• BarbarainBham's Avatar

    BarbarainBham wrote on mytoby's wall

    Happy New Year! I hope your January 3rd appointment resolved some of your questions and stress. Best wishes for your and your husband's health this year!

    2 Comments
    • mytoby's Avatar
      mytoby

      Thank you. The doctor will send a referral for me to go back to the lymphedema OT, the doctor said I did not have seroma, and that my tightness and hardness I am feeling is scar tissue. Who would know? I had no idea that is what it is, no one told me, so many new experiences and feelings that my body is going through.. This is not fun and I feel like a weirdo and my chest looks creepy with the indent and bulge that I now have, I don't like it. Anyone experience these feelings? Also, how long does it take to feel more like "normal" and want to dress better and look more like you used to? and to stop hurting and not always being conscious of feeling lopsided and disfigured. Also, thinking about the cancer coming back, any ache or pain, does it make you think it might be cancer back again? thanks for your input everyone.

      15 days ago
    • BarbarainBham's Avatar
      BarbarainBham

      Hey, mytoby!
      I'm glad you got some of your questions answered. I hope you also asked the doctor the questions you have about how long it takes for. . . . . .to happen----he's the expert.

      Sorry I can't help because I chose a lumpectomy, which is a quick recovery. No one else can see your reply to me, because we posted on your Wall, so I suggest you copy your questions in your reply to start a new Question to WhatNext for everybody to see and reply. (At the top of this page, click on Questions. When you get over 100 replies, people start having computer issues, so it's best to start a new Question.)

      Did you ask your doctor's office for information about counselors and breast cancer support groups in your area? You would enjoy meeting women with similar health problems. Also you should definitely tell your doctors about your anxiety, in case the doctor can reassure you or thinks you need medicine for it.

      Please call the doctor's nurse and don't wait until your next appointment, because that delays you getting better.

      I hope you and your husband get to feeling better and enjoy this new year!

      12 days ago
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    mytoby started following

    User: lynn1950

  • mytoby's Avatar

    mytoby wrote on AKmom's wall

    Hi: I have the same cancer as you, stage 11b, had surgery, mastectomy waiting to see what the next step will be. Mine is ER/PR positive, but HER2 neg. How are you doing and how are you feeling? are you having side effects? any pain?

  • mytoby's Avatar

    mytoby asked a questionBreast Cancer

    Stage 3a breast cancer, treatment options

    169 answers
    • mytoby's Avatar
      mytoby

      Thank you. Just thinking since he is on quite a bit of medicine it would be helping him to feel better. He is still tired a lot, and doesn't have much energy, thinking with all the meds and the rest he is getting he would be feeling better by now. But doesn't seem to be much different than in July. He smoked for 50 years, quit 2-1/2 years ago, but that doesn't help him now, the damage has been done over the many years. Just wondering why he went through the process of getting a defibrillator if it isn't helping him much, just if his heart rate goes over 170 for 14-15 beats they said it would send a shock to him to slow his heart down, it was a lot of stress and inconvenience for him, surgery, no driving and lifting his arm up high for 4 weeks, and now it hasn't really helped him, still the same problem with the congestive heart failure and still in Afib,

      Just discouraging with our used to be "normal" lives and being somewhat active before, and now how our lives have changed. Very depressing some days, they all seem to be about the same, we get out and go to dinner, do some things, errands, and meet some friends, but not like it used to be. No fun things, I go shopping to get out and get my mind off of what is going on, it is a temporary fix to feel better. Thank you for listening.

      23 days ago
    • BarbarainBham's Avatar
      BarbarainBham

      mytoby, ChicagoSandy is a wealth of information and we are fortunate to have her.

      I wanted to remind you that in order to minimize your stress and anxiety about your health, you need to remember to ask your doctor(s) all the questions you have, so make a list starting now and add to it as you think of things until the January 3rd appointment and also for other doctors' appointments in the future. Tell them how you feel about things in case they can reassure you, and remember to give them your health problems rather than worrying at home. Ask the doctor what things to call him (or her) about between appointments. Your lymphedema is one of those things. (Asking for info about support groups for mastectomy patients and a referral to a counselor are other examples for your "list.")

      Reminder---don't EVER take your husband's prescriptions, as ChicagoSandy said. If you have a new health problem, it's fine to call the doctor's nurse. The nurse may be able to advise you, or either will ask the doctor at a convenient time. Best wishes next week.

      23 days ago
    • mytoby's Avatar
      mytoby

      Thank you Barbara and Chicago Sandy. Good information.

      23 days ago
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    mytoby started following

  • GregP_WN's Avatar

    GregP_WN wrote on mytoby's wall

    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

    https://www.whatnext.com/conditions/cancer/breast-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

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