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    NAN67 shared an experience

    Loss (Lost loved one): Pete passed away on February 28, 2014.

    1 Comment
    • LiveWithCancer's Avatar
      LiveWithCancer

      Words feel so inadequate, but I am so sorry for your loss.

      about 7 years ago
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    NAN67 started following

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    NAN67 asked a questionKidney Cancer

    Asking the "Dreaded Question"

    7 answers
    • ladyhawk's Avatar
      ladyhawk

      :(

      over 7 years ago
    • Clyde's Avatar
      Clyde

      Its a hard one to comment on because we all react in different ways and often there is no indicator of which way we will go. I asked this at the first onc meeting. He tried not to answer but I'm a very take charge, don't want to be surprised type of guy. I got my answer (which is far from definite, but gave me an idea of what the doctors expect---so far I'm not behaving as they expected, which is what I expected......) but it WAS just that much more information I needed to make decisions. As long as he can mostly not take it as an expiration date, but as useful information, he should be fine. Doctors don't know everything, especially our final breath unless its within the next few minutes and sometimes not even then. We all need to remember that.

      over 7 years ago
    • Mramdiv's Avatar
      Mramdiv

      Go ahead and make arrangements. I did too. But so do many other people, just to make life easier on your family whenever the time comes. My oncologist told me he expected me to die within 18 months. That was15 years ago. I really don't think there is any advantage to asking that question if you have an agenda in mind. Do your planning and then live life to the fullest.

      over 7 years ago
  • NAN67's Avatar

    NAN67 wrote on Moore20's wall

    Just read your post and want to let you know you're being prayed for! My husband was diagnosed 3 1/2 years ago with Stage IV RCC at age 52. Initially, his right kidney was removed but it had metastasized to his lower spine. He has had continuous oral chemo and has tolerated them fairly well (according to his oncologist). I've been right there with him the entire way.So, I may be able to help answer any questions based on "our" experience. Feel free to contact me if you'd like!

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    NAN67 started following

    User: Moore20

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    NAN67 asked a questionKidney Cancer

    What to expect toward the end of the journey?

    6 answers
    • TessElizabeth's Avatar
      TessElizabeth

      Keeping you and your husband in my thoughts and prayers.

      over 7 years ago
    • GregP_WN's Avatar
      GregP_WN

      HI Nan, I agree with others that IF, it is to the point that Hospice is needed that you should take the Dr's advice and get the service started. IF he is at that point the Dr's will order the service. In general, you must be diagnosed with 6 mos. or less of expected life expectancy. If a person does survive past that point it's no problem, Hospice conitnues on and at anytime you can choose to go off Hospice and back on treatment. Here is our blog post from just last week that explains some of the questions you may have. Click here to read the article=>https://www.whatnext.com/blog/posts/benefits-of-hospice-to-discuss-with-your-loved-one

      over 7 years ago
    • vickyj's Avatar
      vickyj

      My mother had a kidney removed because of RCC , 5 yrs ago. She now has advanced LC. Dr is guessing it is mets from the kidney but doing no further testing due to her weakened health. Where has your husbands mets to ? I am seeing none of the obvious LC symptoms but she has severe fatigue and her body is growing weak. Still eats like a horse when she is awake !Best of luck to you, we have just started hospice so I really don't have a feel for them yet.

      over 7 years ago