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NanHope wrote on Julesalby135's wall
Hi Julesalby135 - I noticed the Stromal Tumor. I have a Stromal Tumor too; they are pretty rare.
Feel free to be in touch any time. Best of luck to you and your loved one.
Nancy -
NanHope started following
User: Julesalby135
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NanHope wrote on Lesl's wall
Hi Lesl,
I just read your story - I am so very sorry that you are walking this journey with the rest of us here...members of a club that we never wanted to join. I am originally from Quincy and go back frequently to visit family so I'm familiar with your whereabouts - you are lucky to be so close to the best health care in the world. Boston is the mecca, IMO, so you are in good hands :)
I have an extremely rare type of OV CA. They sent my pathology to MGH for definitive diagnosis - the experts there identified it. First diagnosed (stage 1!) in 2003, I had my first recurrence in 2011. So stages don't mean a lot to me - stage 1 has a high cure rate, but mine came back just the same. Stupid cancer. I had IV and IP chemo in 2011 (after debulking surgery). Taxol and Cisplatin - hair loss, nausea/vomiting - all the usual side effects. But I got through it and SO WILL YOU! This too shall pass.
Had 2 more surgeries in 2016 for small recurrences (found on CT or MRI), but I am doing well now and feel great.
Three things:
Have your doctors mentioned IP chemo for you (the chemo is administered through a port directly into your abdomen/pelvis)?
Also, I took sleeping pills during my chemo - I would never have slept if I didn't! I figured I would do whatever I needed to do in order to get through the treatment, which was the ultimate goal - complete all treatments so it could kill the cancer. My advise is don't worry about what you need to do and/or take to complete your treatment. I no longer take sleeping pills, but am glad I did when I needed them.
Lastly, not sure how you feel about meditation, but a nurse introduced me to a great app for guided meditation that I find super helpful. It's called Insight - its free and I downloaded it on my phone. Very easy to use and I really love it.
I wish you well, Lesl - stay strong. Us "Boston girls" are strong stock! There's nothing we can't do! Cancer messed with the wrong ladies here.... :)
Do stay positive - you WILL get through this. Sending you a cyber hug xoxo Nancy -