• Bug's Avatar

    Bug wrote on NervousNellie's wall

    Hi, NervousNellie. I see you're new to the web site. You have found a great resource here. There are a lot of really wonderful people on this web site - very kind, helpful, and supportive. I hope you find as much support here as I have. I bet you will. Take care.

  • NervousNellie's Avatar

    NervousNellie started following

  • NervousNellie's Avatar

    NervousNellie asked a questionBreast Cancer

    How reliable is the CA27.29 Blood Test in detecting Cancer Recurrence

    17 answers
    • happydyad's Avatar

      Today I had my annual thermography scan. I do that annually and also if I have a “scare”. It gives me comfort to be able to get this alternative view of what’s going on in my body. I am mentioning it because the original question in this thread was about monitoring for cancer recurrence. Thermography is another option for checking yourself. There is no definitive test short of a biopsy but you can layer the “soft” findings from whichever tests you have access to: cancer markers, thermography scans, blood work, bone scans, and MRI’s. You can at least get a sense of where you are. The fear of recurrence causes so much anxiety for all of us. Hugs & prayers, Judy in Ky

      6 months ago
    • Lorie's Avatar

      TX. I watched video about the thermography and was surprised about the two studies came out about not so good after effects of mammography with the radiation and the smashogram effect possibly spreading the cells.

      6 months ago
    • Stickit2stage4's Avatar

      Hi NervousNellie - I completely understand. I am Metastatic - 6 yrs this August. My Oncologist has me do markers every 30 days - CA 27.29 and CEA. Ever since I started Ibrance/Faslodex three yrs ago my CA 27.29 has been literally all over the place. For example, last month it was 58.3 (my hospital's lab has a standard high range of 40). Today it came back at 44. When this started happening, my anxiety was off the charts. When she told me that if and when the CA 27.29 doubles (80 or higher) at that point she will get concerned. Until then, as long as the CEA is within the normal ranges, not to worry. I know everyone is different, but I hope this helps a little.

      6 months ago
  • NervousNellie's Avatar
  • NervousNellie's Avatar

    NervousNellie shared an experience

    Oh No (CA27.29 has risen12 points in 6 months from 41 to 53): I am worried that now after almost 5 years cancer free with no symptoms and perfect routine blood work that the CA27.29 rise may indicate a recurrence. Confused about the reliability of the test versus the anxiety it creates.

    • Gabba's Avatar

      Many reputable cancer centers do not use CA27-29 cancer markers due to their unreliability.
      Please consult with your oncologist regarding its use and significance for you.
      Take a deep breath. Good luck!

      6 months ago
    • NervousNellie's Avatar

      My Onc doctor retook all 3 Tumor marker tests and they were not indicative of further testing. The angst it causes, in my opinion, outweighs the potential benefit of early Dx in the absence of other physical or chemical indicators of recurrence. I may ask the doc to not do these in the future.

      5 months ago
  • NervousNellie's Avatar

    NervousNellie shared an experience

    Celebration (Finished treatment): I will be 5 years cancer free in June 2019

    1 Comment