• Bug's Avatar

    Bug wrote on NervousNellie's wall

    Hi, NervousNellie. I see you're new to the web site. You have found a great resource here. There are a lot of really wonderful people on this web site - very kind, helpful, and supportive. I hope you find as much support here as I have. I bet you will. Take care.

  • TerriL's Avatar

    TerriL wrote on NervousNellie's wall

    I am so sorry you are having to deal with this again. I was diagnosed with tnbc a year ago, and am almost finished with treatment. My mother also died of metastasized breast cancer. There is a lot of great info on this site. Best of luck to you!

  • GregP_WN's Avatar

    GregP_WN wrote on NervousNellie's wall

    Hello and welcome, we are sorry for your diagnosis, but we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page, Take a look at it to get you started on some information. You will notice at the left side of that page a listing of most types of cancer. You can scroll down to find your diagnosis. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.


    If you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

    Follow Us on Twitter Click Here =>http://bit.ly/XExkce
    Find Us on Facebook Click Here =>http://on.fb.me/zjBAPl
    Our Pinterest Page with Resources=>http://bit.ly/12qVtEs
    Follow Us On Instagram=>>http://bit.ly/1pF5yh0
    Our YouTube Channel http://bit.ly/2zyUxt9
    Our Help Page with instructions for the site->http://bit.ly/1aR5165

    Watch Our Welcome Video=>>https://youtu.be/Y5QZZsC-H38

    GregP 3X Survivor
    WhatNext Community Mgr

  • Maret's Avatar

    Maret wrote on NervousNellie's wall

    Congratulations! I was diagnosed with triple negative IIIB also in January of this year. No Brac 1 or 2 either. Straight across the board negative. Have 6 more weeks of chemotherapy left, then lumpectomy and 6 weeks of radiation. I'm glad to see people who have gone through this and are now cancer free. It sure gives me hope and positive thoughts for the future outcome. Ty for sharing your story.

  • NervousNellie's Avatar

    NervousNellie started following

  • NervousNellie's Avatar

    NervousNellie asked a questionBreast Cancer

    How reliable is the CA27.29 Blood Test in detecting Cancer Recurrence

    17 answers
    • happydyad's Avatar

      Today I had my annual thermography scan. I do that annually and also if I have a “scare”. It gives me comfort to be able to get this alternative view of what’s going on in my body. I am mentioning it because the original question in this thread was about monitoring for cancer recurrence. Thermography is another option for checking yourself. There is no definitive test short of a biopsy but you can layer the “soft” findings from whichever tests you have access to: cancer markers, thermography scans, blood work, bone scans, and MRI’s. You can at least get a sense of where you are. The fear of recurrence causes so much anxiety for all of us. Hugs & prayers, Judy in Ky

      4 months ago
    • Lorie's Avatar

      TX. I watched video about the thermography and was surprised about the two studies came out about not so good after effects of mammography with the radiation and the smashogram effect possibly spreading the cells.

      4 months ago
    • Stickit2stage4's Avatar

      Hi NervousNellie - I completely understand. I am Metastatic - 6 yrs this August. My Oncologist has me do markers every 30 days - CA 27.29 and CEA. Ever since I started Ibrance/Faslodex three yrs ago my CA 27.29 has been literally all over the place. For example, last month it was 58.3 (my hospital's lab has a standard high range of 40). Today it came back at 44. When this started happening, my anxiety was off the charts. When she told me that if and when the CA 27.29 doubles (80 or higher) at that point she will get concerned. Until then, as long as the CEA is within the normal ranges, not to worry. I know everyone is different, but I hope this helps a little.

      4 months ago