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    User: RachaelC@StF

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    User: CancerNews

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    User: GregP_WN

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    Nessa shared an experience

    Side Effects (Seizures): Seizures. Oh seizures. My brain has an affinity to shoot off like a firework. Or maybe it did (hopefully did). There were times that I was having grand mal seizures weekly. I was placed on nearly every anti-seizure medication there was (most of which did not work and/or had unbearable side effects). They effected my quality of life (and can say that they still do as I am still highly medicated to the point of where I must nap for 2 hours each day even with 12 hours of sleep). I obviously cannot keep a full time job. I am hoping that as time passes and my brain continues to heal and settle that the dosage can be lowered, and I will be able to at least show off my work ethic (I am beginning to think people think I'm a lazy woman with a Dean's list English degree from IU and return student for Massage Therapy...still making all A's....). Bah.

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    Nessa shared an experience

    Radiation (External radiation ): While receiving radiation from the Novalis machine itself was not painless (I called it ONE of my boyfriends as I spent more alone time with it than any potential boy I could have been dating), but the side effects were pretty terrible. It gave me my signature right temporal bald spot (it is pretty cool as it shows off my scar - which always wins at "who's scar is the most badass?" contests). I will admit that it took me a year or two to accept it, though I fully embrace it now. And it WAS the radiation that made that hair fall out, not the chemo. I remember the day it started to fall out. I sat outside just pulling the strands from where they had so happily clung and dropped them into the wind with the hope that a bird would gather it for her nest - that maybe some creature could gather some warmth from it - I had already donated much of my long mane to locks of love at that point - mostly to lessen the load of nearly a foot of hair falling from one spot. Once most of the hair had fallen out, I went to the salon, got a mani/pedi, and shaved my head. Along with the hair, I was incredibly tired, thirsty, and wanted NOTHING to do with food. After six weeks of 5 days with Novalis and 2 days off, I was delighted to be finished with the radiation treatment.

    1 Comment
    • geekling's Avatar
      geekling

      Please let me know if/when your hair grows back ... best wishes

      about 1 year ago
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    Nessa shared an experience

    Oh No (Diagnosed): I had a grand mal seizure in my parent's basement. After a CT scan, I was sent to a hospital in Indianapolis for an MRI that detected the little walnut sized bugger shacking up in my brain (the story is a bit more dramatic than that...but I gotta leave something for my book readers!).