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    User: Luckylissy

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    New2CLL wrote on Luckylissy's wall

    Hi Luckylissy,

    Like you, I was diagnosed with an indolent form of CLL, Stage 0, with no indication for treatment at this time. I got my diagnosis in the spring of 2014, and currently have bloodwork every 6 months. Apart from that, CLL doesn't stop me from doing the things I want to do. I just feel tired sometimes, which goes with the territory. I hope that you're managing your condition well, and I wish you the very best. Stay strong and be well. ~ Carla

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    User: bdm0911

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    New2CLL asked a questionLeukemia

    Any info on a connection between MS and CLL?

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      bdm0911 (Best Answer!)

      Good Morning! I was diagnosed with relapsing-remitting MS in 1999 at age 19. In 2014, aged 34, I was diagnosed with CLL. My oncologist and hematologist have never discussed a possible connection. Your current symptoms of tingling hands, pain in your eye and balance, in my experience, were related to my MS. At this point, I feel like I'm doing o.k. besides being exhausted. I am currently on Imbruvica for CLL. I took medicine (shots) for the MS but haven't for about 7 years or so. Hope your doctor offers some insight. Best Wishes.

      over 2 years ago
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      Vfig

      Hello, I was diagnosed with CLL in 2014 stage 1B I went through 6 months of chemo and am in remission. Then a out year and a half ago I was diagnosed with MS. I take my ms med a d have good and bad days the worst are the muscle spasms and neuropathy in my feet. I still work out it's really hard especially when my body hurts everywhere. Hope the best for you

      over 1 year ago
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    New2CLL asked a questionLeukemia

    Elevated basophils... what does it mean to my CLL?

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      barryboomer

      What did the Doctor tell you?
      It's just probably part of the CLL....

      almost 3 years ago
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      geekling (Best Answer!)

      Basophils have something to do with inflammation and allergy.

      https://en.m.wikipedia.org/wiki/Basophil

      Science does not know a heck of a lot about them except that there are often more of them than might be expected in bone tissue with a condition called chronic myelogenous leukaemia.

      I have no personal experience despite having a strong allergic reaction to toxic molds. Most doctors to whom I went for assistance simply thought I was psycho at the time. I eventually found a professor emeritus who was able to help me with a temporary fix but, although I am better, the allergy persists.

      No one ever tested my basophils in relation to the allergy.

      You need to speak with your doctor. Dont allow him or her to either brush you off or hurry away until you understand.

      A sad note is that though the doctors have made some few correlations, the Nobel Prize winner who discovered basophils and these correlations was awarded only slightly over 100 years back in 1908.

      It seems to me that if you have inflammation, you must do something to fight or control it.

      Best wishes

      almost 3 years ago