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    nicki0920 started following

    User: sue57

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    nicki0920 wrote on SharkinRN's wall

    Hi there. Geekling asked that I get in touch with you because you may want to go to a cancer center that specializes in your type of cancer. I did the same thing when I was diagnosed. I'm not rich by any means and needed to fly from Southern Indiana to Rochester, MN. I found a wonderful organization that arranges flights for cancer patients. They are called Angel Flights. Their web address is http://www.angelflight.com/. They were wonderful people. They found pilots to volunteer their planes, time and fuel to help cancer patients get the care they need. If you need any other travel type info, please let me know. It is a scary and overwhelming time in your life. It helps to lean on people who have been through similar situations.

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    nicki0920 asked a questionNon-Hodgkin Lymphoma (NHL)

    PAP smear came up LSIL and tested positive for high risk HPV

    • catmoy's Avatar
      catmoy

      If you can calm yourself, it is best not to worry . You can't change anything right now. I had a cone biopsy years ago due to dysplasia. The great news is that they identified it and you can move forward with treatment, if needed. I was diagnosed with a very rare, aggressive cancer of the uterus that likes to spread like wildfire. I found a lump in my back. Of course I worried for a while, but decided the worry was bad for my body. The grapefruit-sized tumor was removed and it was benign. So try not to think the worst. It's really hard on your body. I'll be praying for you.

      over 3 years ago
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    nicki0920 shared an experience

    Oh No (Money): Disability claim denied. I had a feeling it would be denied on the first go around. Now to find a lawyer to appeal. I'm not sure how much longer I can get by this way.

    2 Comments
    • Schlegel's Avatar
      Schlegel

      There was an article in the newspaper a few years ago that said about 85% of first claims are denied. When picking a lawyer, be sure to get one who does this regularly.

      about 4 years ago
    • DJS's Avatar
      DJS

      How is this going? My cousin had to hire a disability claim lawyer, and was successful. Let me know if you want the referral information.

      about 4 years ago
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    nicki0920 asked a questionNon-Hodgkin Lymphoma (NHL)

    Has NHL turned me into a hypochondriac?

    10 answers
    • DJS's Avatar
      DJS

      And don't wait for lumps, bumps and rashes to appear. Hypervigilant also includes being proactive. For example, if another doctor wants to do a procedure -- my orthopedist would like to do orthoscopic surgery on my hip -- I made sure to ask my oncologist if that was okay (the answer was an emphatic no). This wasn't bone related, just tissue…NO. (My orthopedist, by the way, assured me this would not be a problem. Always check with your oncologist!) If you brush off a symptom, or if you let someone else tell you to stop being neurotic, hey -- they're not the ones who'll suffer the consequences. Within reason, let your doctor be the judge as to whether you should be concerned or not. I've been called a lot worse things than a Worry Wart.

      about 4 years ago
    • barryboomer's Avatar
      barryboomer

      It NEVER goes away....I have new stuff now that is driving me nuts......
      If I didn't have cancer I'd just not pay any attention BUT.......ugh!

      about 4 years ago
    • dhtdiver's Avatar
      dhtdiver

      Likewise, when I first develoved a rash in my armpit, my first thought was cuteanous lymphoma. A trip to my primary care doc showed it to be a simple rash -- a blocked pore. Changed deoderant. Problem solved. During a routine follow up with my oncologist, I mentioned a little bump in my groin area. He checked it -- a quite common cyst. It was gone by it's own accord in 2-3 days. After we returned from a vacation, my wife noticed what appeared to be a mosquito bite on my lower back. When it got a bit larger, I had it checked out. Turned out to be a recurrance of the DLBCNHL I had in my brain 3 years earlier. 4 sessions of RCHOP21 & radiation later it was gone. This type of recurrance was SO rare, in fact, NO other recorded cases like it - ever, anywhere- that it was published by my oncologist.

      Speaking of my original brain tumor -- In Sept 2009 I had thought that the weakness and loss of use of my right side was due to a torn rotator cuff affecting the various nerves. Turned out to be a 3.5 cm malignant, inoperable CNS Lymphoma. Powerful chemo & radiation....total remission by March 2010.

      So, it is not hypochrandia, it is listening to your body. I now have everything checked out.

      about 4 years ago