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    NJZ62 asked a questionEndometrial (Uterine) Cancer

    Any idea of prognosis for recurrent (metastasized) endometrial cancer? Like my oncologists but they are very vague about best or worse case

    9 answers
    • bigladylw79's Avatar
      bigladylw79

      I am having the same problem. I was diagnosed with endometrial cancer with clear cell adenocarcinoma in February. I was given a total hysterectomy. The doctors said with the clear cell they wanted me to have radiation just in case. I couldn't receive radiation because I weighed to much for the special table, so they ordered 6 rounds of taxol/carboplatin. I was ready for my last treatment to be in August. About 4 days before my last treatment they found my cancer had metastasized to lymph nodes in my pelvis and back. My doctors now have me taking a new chemo drug called Doxil. They are hoping it will shrink the cancer. I will have a full body Ct this month. Sorry for the long post.

      over 4 years ago
    • NJZ62's Avatar
      NJZ62

      Yes, Stage 4 once it's metastasized - that much I do know.

      Nancyjac is correct - "best case, worse case, you die of something."

      I'd just like to have some frame of reference to make plans, decisions - should I retire now? That sort of thing...

      over 4 years ago
    • Karenhopeful's Avatar
      Karenhopeful

      I am in the same position.I"m feeling weaker and weaker, sicker and sicker and about ready to give up. But no one gives me any time frame at all. I've put off many things my husband will need thinking I had another year, but now it doesn't feel that way at all. And he is going to be stuck with our finanaces which I normally take care of. I'm not taking any kind of pain medications, maybe that would help, but it seems everything I take makes me feel worse lately. I've heard narcotics cause constipation and I do not want that again either. But currently I can't keep food or liquids down and my abdomen area really hurts, so I don't know what can get constipated. Initially, she told me she had patients similar to me living now out 4-5 years, but now all I hear is that it is palliative care.

      over 4 years ago
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    NJZ62 shared an experience

    Side Effects (Bladder problems): Backed up kidneys (hydronephrosis) due to scarring where the ureters attach to the bladder.
    Scarring either due to hysterectomy surgery or radiation damage.

    Have 2 stents in to relieve the problem until oncologists give okay for surgery to repair the ureters.

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    NJZ62 shared an experience

    Side Effects (Bowel obstruction): Partial bowel obstruction due to adhesions from total hysterectomy in 2010.

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    NJZ62 shared an experience

    Side Effects (Constipation): Severe constipation - oncology nurse recommended 2 doses of Miralax every day (unless too loose), has helped some.