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    nms68 posted an update

    I had chemo this last week with a portable machine. It was 5FU. I thought it would be an ok week, but it really wore me out. I did chemo before when I had Hodgkins, 8 years ago, but this wore me out quick. I was only able to work 3 half days. The chemo ended up leaking, and I had an allergic reaction to the tape. It was a rough week, but one week down!!!

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    • Jodi's Avatar
      Jodi

      Sorry I am responding late to this. I am sorry to hear you had a bad week and an allergic reaction to the tape. I am assuming you have a port? I did 5FU also and I was very surprised that I never got sick. I felt tired but never got sick. I also did mitomiacin (spelling?). I tried working while doing my portable chemo too. It helped keep my mind off of things but I had to take several naps. Are you doing one week on and two weeks off?

      over 4 years ago
    • nms68's Avatar
      nms68

      Hi Jodi,

      I do have a port. I am very surprised by how bad I felt, as I was told that I wouldn't even know it was going on. I ended up having to go in yesterday for 4 hours of hydration. The mouth sores are so bad, I haven't been able to eat or drink for days. I will go back tomorrow for more hydration before radiation. My doctor told me that the dose of 5fu was way too much for my weight. They will adjust the dose next time. I have 6 weeks of treatment. Week one and week 4 are chemo.
      I was trying to work, but because my pay will stay the same, upper management told me to take the time off and get well and strong, that was defeating to me! :)
      How are you doing?

      over 4 years ago
    • Jodi's Avatar
      Jodi

      I am sorry to hear about them overdosing you. That's not cool...you poor girl. I got the chemo mouth so bad. It started out with everything tasting like salt or metal and then it turned into the sours. I got some of that Magic Mouth and within two days the sores were GONE but my tastebuds never returned and the yeast never really left until a few months after I was finished with chemo. Did you do the mitomiacin too or just the 5FU. It sounds like we had the same chemo schedule. I wore the portable chemo fanny pack but I saw someone with a purse and now I wish I would have been more fashionable about it. I was weird... I dressed up each time I went to chemo. I did not dress up for radiation though. I had so much anxiety every time I went to radiation. I did the Tomotherapy. I lost a lot of weight but my hair did not start thinning until May and I did my chemo in Feb and March. I am feeling good except of the side effects. Are you doing radiation? If so, I need you to message me in private because I have some things I need to share with you. Listen, the one thing I did not want is for anyone to scare me with horror stories because I was scared enough as it is so I will not do that to you but I am so thankful that I met someone online that had been thru Anal Cancer treatment and prepared me and gave me suggestion. I would like to do that for you if you are interested. I think all of us on this site would like to do that.

      Anyway, I am feeling okay. My hips and joints still hurt and my hair isn't as think as I would like it to be but life is beautiful because I am alive. I started bleeding again last week but that's probably because of the fissures (small cuts in that area from not taking enough stool softeners).

      Thanks for responding :) Hang in there and PLEASE PLEASE make sure you have a good anti-nausa pill and if you are doing radiation make sure you have a shower head that you can remove and make hand-held...it makes life much easier.

      over 4 years ago
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    nms68 shared an experience

    Procedure or Surgery (Implant chemotherapy port): I had a port when I had Hodgkins, there were no problems with that port. I was up and moving the same afternoon and very little pain. Because of a previous port, they tried the same side, but with the scar tissue had to go to the other side. So a hole in the veins on each side of the neck. Because they had to go in both sides, I was given double the medicine, so I was sick the rest of the day. The sickness combined with the pain made for a long day.

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    nms68 shared an experience

    Oh No (Diagnosed): In 2004 I was diagnosed with Hodgkins Lymphoma. After 6 months of Chemo, I was cancer free and have been for almost 8 years, when....I am diagnosed with a new cancer.
    This time it is Squamous Cell Carcinoma, Anal Cancer. Not only do I have cancer again, but I hate the word Anal??!!

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