• nobrand's Avatar

    nobrand posted an update

    Road to Recovery -- Life reboot. I have completed the stem cell transplant, and it does feel like a second lease on life. A confusing, but beautiful thing.

    It has been quite the experience, and I'm pretty overwhelmed by nearly everything in life still. I forgot everything about living at home after my 22 day hospital stay. I am so lucky to have my mom, sister and partner to help me in this time-- I don't know where I'd be without them!

    3 Comments
    • marshala1's Avatar
      marshala1

      Congratulations on your new life! May you continue to be blessed.

      over 3 years ago
    • attypatty's Avatar
      attypatty

      Looking back, it's only been 9 months and you have endured more than seems humanly possible. I am so happy that life is good again. One day at a time is all we ever get so hold on to it and the ones who love you.
      Fight On, Attypatty

      over 3 years ago
    • polgara's Avatar
      polgara

      I'm so glad to hear that your surgery went well. Life2.0, go enjoy and only wishing you the very best.

      over 3 years ago
  • nobrand's Avatar

    nobrand shared an experience

    Procedure or Surgery (stem cell transplant): I just had a ceremonious re-injection of my stem cells. This has been a wild ride, and I must say-- I'm a bit lightheaded from it all. My hopes are really high right now, and really feeling that urge to live!!

  • nobrand's Avatar

    nobrand shared an experience

    Symptom Management: Nausea got you down? Try a BAD CAD!!! On demand Benadryl, Ativan and Dexamethasone!

    2 Comments
    • FreeBird's Avatar
      FreeBird

      sounds delicious.

      almost 4 years ago
    • debbie1951's Avatar
      debbie1951

      You crack me up! Glad to hear you, and your sense of humor, are still kicking. Hang in therer, buddy.

      almost 4 years ago
  • nobrand's Avatar

    nobrand posted an update

    I'm still alive! High dose chemo in progress.. on day 5 of 7. Just thought I'd let ya know ;)

    2 Comments
    • GregP_WN's Avatar
      GregP_WN

      HEY!! Good to know, glad your almost done with it too. Let us know when ole' number 7 is finished.
      we wish you the best.

      almost 4 years ago
    • FreeBird's Avatar
      FreeBird

      Kick butt.

      almost 4 years ago
  • nobrand's Avatar

    nobrand shared an experience

    Drug or Chemo Therapy (Medicine for low white blood cell count): Mobilization! I'm actually doing two Neupogen shots to myself per day. I just gave myself my own injections, and it wasn't really that bad.

    2 Comments
    • FreeBird's Avatar
      FreeBird

      Two shots. Aren't you lucky. How do you do that? In your belly? Arm?

      almost 4 years ago
    • nobrand's Avatar
      nobrand

      Hey Freebird.. sorry for the delay in response. I gave my own shots right straight to the belly. Not bad at all!

      almost 4 years ago
  • nobrand's Avatar

    nobrand shared an experience

    Drug or Chemo Therapy (Chemotherapy): This was R-ICE #4-- my "mobilization" as they say. The point of this chemo is to do two things:

    1. Kill more cancer
    2. Somehow allow my bone marrow to release stem cells to my bloodstream.

    Starting tomorrow, I will have to give myself daily Neupogen shots to stir my bone marrow into producing white blood cells (WBCs). This will also cause the crowding, and thus release of stem cells for collection via apheresis.

    Overall, my doctor says they don't like doing this many R-ICE treatments, but they have been somewhat okay. Nausea is a mysterious machine, and I spent one day of four knocked out to avoid vomiting myself to death.

    I was released from the hospital today, and I'm really having to take it easy. I had a resting heart rate of 145 earlier and troubles with pain on and of from my new Hickman catheter. I think the heart has chilled out a bit.. I'm afraid of what the night will bring.