• GregP_WN's Avatar

    GregP_WN wrote on NorthernSnowB's wall

    Welcome to the WhatNext network! We are happy you found us but sorry for your reason to be here. There are a great bunch of people here that are willing to coach you through your issues that will come up. It's good to know that other people have been through exactly what you are facing now and have gone on to a good life afterward.

    If you have an issue you need help with, just post it on the questions page, someone will see it and add their own personal experiences to help you.

    If you see a question posted that you have experience with please at your answer to that question. We all have issues we need help with, you might have the answer someone needs.

    We wish you the best and if you have any questions about the website or how to post something drop us an email at contactus @ whatnext . com and someone will help you out.

    Greg P
    Community Mgr. / Social Media Mgr.
    3X Survivor

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    NorthernSnowB asked a questionHodgkin Disease

    If I get a port how long do I have to keep it in?

    8 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      I got my port in 2013. It was used every two weeks for treatment for 4 years or so ... I can't remember exactly ... and then I went to monthly treatments. My last treatment was in April 2019. We all presume that I will one day have to return to treatments so no one has suggested that I do away with the port at this time. It is a pain to get it flushed, but otherwise, I am glad I have it (even though I do hate that it feels like it screams "she has cancer!" if I wear something where it can be seen, which I very rarely do.)

      3 days ago
    • cllinda's Avatar
      cllinda

      The flushing is no big deal. I had mine flushed every six weeks. They just inject into the port some saline fluid in a syringe to make sure it's still working. It takes just a couple of minutes.

      2 days ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Flushing is only a big deal if you have to drive for an hour each way to have it done ... and then wait for awhile for your turn in the chair. The actual process of the flush is exactly as cllinda says - easy peasy. I hate having it done because of the time it takes out of my day, not because there is anything difficult about it.

      about 7 hours ago
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    NorthernSnowB asked a questionHodgkin Disease

    I received an email asking me to fill out a survey for Whatnext. Is this real?

    6 answers
    • GregP_WN's Avatar
      GregP_WN

      Yes, it is real, no scam here and if you qualify for it you earn easy money! Rare patient voices in partnership with Whatnext.com has paid out over a million dollars to participants.

      8 days ago
    • PaulineJ's Avatar
      PaulineJ

      I've never got surveys for Whatnext.com

      8 days ago
    • Bloodproblems' Avatar
      Bloodproblems

      I just signed up here so I've not gotten any of those but hope I do.

      6 days ago
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    NorthernSnowB started following