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    NZLrcrazy started following

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    NZLrcrazy asked a questionLeukemia

    Does anyone have any suggestions on getting through chemo with no emotional or physical support during chemo?

    15 answers
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Remember we're always here for you. And we won't judge, as if we are not in the same shoes, we are in shoes of a similar style. Except for hair loss, I didn't look all the sick either, and I worked through chemo. A few people knew the toll it was taken, but most either assumed I was fine or thought I was brave. One coworker didn't know I had cancer (um, weren't the hats & scarves a give away that something was at least different...?). Could it be that our nearest & dearest are acting that was as a protective shield for themselves? I've be in TONS of denial w/my mom's illness (not cancer). I'm just finally accepting that mentally she is in her own world and it's not necessarily our world. But there was LOTS of denial before that. And I'm still fighting w/it. Could that be the reason for the attitude of your family? Just a thought.

      almost 3 years ago
    • NZLrcrazy's Avatar
      NZLrcrazy

      Yes, Buckeye, I think you have pinpointed the issue. If they do not acknowledge the problem, then the problem does not exist. Unfortunately, I must live in reality. I need to make decisions for today, as well as the future - whatever that may bring. I don't have the luxury of denial. I'm very sorry for what you're going through, between your illness and your mother's illness. My father had dementia. It was very sad and ever changing. I am also here for you. May we each get through our difficulties with courage and strength. Thank you for the support.

      almost 3 years ago
    • Blazin's Avatar
      Blazin

      Don't forget that the people around you are ignorant in this the same way you were at the beginning of this. If you can just find one person to go to your appointmens with you and listen to you they may be able to help make others understand what you are going through physically, mentally, and emotionally, I was never alone but had to do a lot of explaining to make people understand. No one will totally understand but if they are your loved ones I think eventually they will understand to some extent. Remember they will have some denial with this also. Stay strong keep up the fight and we will all beat this. I've been fighting for 6yrs now with no chemo drugs to help me for the last 15 mnths only steroids to keep the desease in check until something comes up.Im 45 with CLL and the 17p deletion gene I will never give up my fight and you do the same. There is tones of support on here all the time just keep asking and everybody is here to help.

      almost 3 years ago
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    NZLrcrazy shared an experience

    Loss (Relationship ): I was married for almost 25 years and have 3 children. I spent so many years trying to find the cause of my health issues before being diagnosed with CLL that my husband left me. Following my divorce I began seeing a man. We were together almost 9 years, living together most of that time. He had a difficult time dealing with my situation and would hyper-focus on minor problems, but could not deal with the greater issues at hand. He is in the process of moving out, claiming that he is now allergic to my dog - a dog I've had the entire time we've been together.

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    NZLrcrazy shared an experience

    Procedure or Surgery (I had a surface excision of the cancerous lesion near my ankle.): I am surprised that after almost 8 months, the scar has not faded. I am very self-conscious about the scar. I am also concerned about shaving my legs and the risk of infection in that area, due to the CLL.

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    NZLrcrazy shared an experience

    Oh No (Diagnosed): Diagnosed with basal cell skin cancer. I didn't have a typical presentation. I had a small, rough patch of skin that would not heal. Dermatology did a biopsy just to rule out cancer. The results were positive.