• kalindria's Avatar

    kalindria wrote on OcSurvivor13's wall

    Hey, OcSurvivor13! Welcome to WhatNext.com! Since your treatment was completed a while ago, my videos may not be helpful but a few months ago, I recorded a series of videos for WhatNext about my cancer journey. You may find them helpful. I've included a link at the end of this message should you wish to check them out.

    WhatNext.com is a great place for everyone, from the newly diagnosed to those of us who've been living with cancer for some time - friends and loved ones too! While you're here at WhatNext.com, check out the questions and experiences of other folks here. You can find people who've had the same cancer, surgeries, chemotherapy and experiences should you wish. It's often reassuring to know others have been through what you're facing and thrived. I also recommend the PINBOARD - there are often humorous or uplifting posts that can make your day. Definitely worth checking out.

    https://www.whatnext.com/video_pages/ovarian_cancer_videos_kalindria

    In the meantime, I'm here if you have any questions or want to chat.

  • macfightsback's Avatar

    macfightsback wrote on OcSurvivor13's wall

    Welcome OcSurvivor13,

    I love the number 13. I was born on Friday the 13th. I have always considered it my lucky number. I hope it will be lucky for you. I was diagnosed stage 3C in 2015. I had chemo in 2015 and 2018. I have 3 "souvenirs" from chemo. I have mild neuropathy in my left foot after Taxol and Carboplatin in 2015 and ringing in my ears from Gemzar and Carboplatin last year. I have mild chemo brain which causes me to have trouble remembering common words at times.
    I can describe what I am trying to say initially and after a few minutes it may come to me, sometimes it does not. I have actually googled a description to figure it out occasionally. What are your long lasting side effects? How are you doing? Feel free to ask any questions. We are here for you.

    2 Comments
    • OcSurvivor13's Avatar
      OcSurvivor13

      I was dx with ovarian cancer in 2013 :) Thus the 13.
      I have chemo & menopause brain so lots of forgetting & searching for words. Neuropathy in my feet, toes & hands, depression (seeing a counselor), survivor guilt, weight gain (I've lost 55 lbs so far) and several other health problems that my specialist & pcp feel are post chemo related. I have been considered No Evidence of Disease since Oct 2013, so far so good.

      3 months ago
    • macfightsback's Avatar
      macfightsback

      Congratulations on being NED for almost 6 years. It looks like you are doing all you can to make the most of your life. I gained alot of weight too but I am not sure it is chemo related as much as a way I cope with everything. Wishing you the best.....

      2 months ago
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  • Lynne-I-Am's Avatar

    Lynne-I-Am wrote on OcSurvivor13's wall

    Hi there lady, thanks for sharing those experiences. Every month ovarian cancer survivors come to WhatNext seeking information and/or a connection to other survivors. Knowing your experiences and commitment to helping others I know you will be a valuable asset to the site and all of us are stronger together.

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