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    OliverV wrote on CancerChicky's wall

    Hey,
    Sorry to hear about your diagnosis. When I got the results of my biopsy before a long weekend, I went on the internet to read up on pleural mesothelioma, and the statistics are grim. But I have never thought of myself as a statistic. Plus, all you read is based on data that's a year old or older, and based on patients that are usually quite a bit older than us, since meso takes such a long time to break through. So your chances might be quite a bit better than what you read! Don't lose hope!
    I was diagnosed in Feb 2013. Surgery (one lump that was wrapped around an artery had to be left behind) and chemo with Cisplatin followed, and it was a XXX. I hope your chemo works better than mine did. I was switched over to another, more tolerable drug, but what did my cancer in (so far, at least) appears to have been my own immune system. One of the chemos affected my kidneys and triggered a rare autoimmune disorder that ate my own blood cells, but apparently also my cancer. While that is apparently unheard of, there are clinical trials out there that work with your immune system to fight your cancer. See if you can join one of those, if your chemo doesn't work out. Not sure how your medical care situation is where you are. You might have to travel for a trial. I know they have them in UCSF, among other places.
    I have a friend who's been diagnosed 13 years ago with abdominal mesothelioma, I'm approaching my 5 year mark since diagnosis, and 4 years without detectable cancer. If we can do it, so can you - just don't give up!

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    OliverV wrote on ai94's wall

    Don't despair reading statistics! They are based on outcomes with older medicines, and on a patient base that is largely much older. You are not a statistic, so your outcome will be much better. I know. I was diagnosed early Feb 2013, went through surgery four years ago, and two different courses of chemo. I'm still around, four years later, still doing fine, thank you very much, and my scans have been mostly clear for almost three years. Mostly, because there's a scary blip every other scan, that disappears by the next. I have a friend who was diagnosed with abdominal meso 13 years ago, so I am not the only one. Chances are what they are, but don't believe that you can't be one of those who beat the odds!!

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    OliverV started following

    Question: emotions

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    OliverV shared an experience

    Celebration (Not calling it Remission, yet): Well, no such thing with Meso, but it seems like the side effect of my immune system going berserk on me has made it (knock on wood) effective against my cancer. All of my scans have been clear for almost two years now except for one, and that with being off chemo for a year. Two scans ago there was a mildly active thickening, but it was gone again in my most recent scan. Go figure, but fingers crossed

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    OliverV shared an experience

    Other Care (Treatment for kidney disease): Thank God for the medical talent in the Bay Area. My Nephrologist correctly diagnosed my rare condition, and turns out, two years ago a treatment for it was approved. So now I'm in the infusion room for that instead of chemo, but, as I say, other than having two deadly diseases I am doing great