• packerbacker's Avatar

    packerbacker posted an update

    The Gamma-Knife procedure went well. The doctors were very pleased. The weakness on my left side may (hopefully) improve, Some other news: I had a liver ultrasound Tuesday due to elevated enzymes and the cancer is also involving the liver. Chemo starts again Friday. REALLY hoping and praying for something to work. But, I'm not giving-up!

    3 Comments
    • LuvinSis' Avatar
      LuvinSis

      I'm glad the procedure went well and you've had some positive test results. Sending positive healing vibes your way! (((hugs)))

      over 3 years ago
    • RachaelC@StF's Avatar
      RachaelC@StF

      So glad to hear your procedure went well, packerbacker! Never, never, never give up!

      over 3 years ago
    • GregP_WN's Avatar
      GregP_WN

      Well you just balance the good news with the bad news, and let the good news beat the XXX out of the bad news. will that work.

      over 3 years ago
  • packerbacker's Avatar

    packerbacker asked a questionHead & Neck/Throat Cancer

    Keep me in your prayers tomorrow (1/30), please! I have Gamma-Knife radiosurgery to a lesion in my frontal lobe.

    17 answers
    • vet613's Avatar
      vet613

      My best wishes for a great result go out to you & yours.
      vet613

      over 3 years ago
    • Shoeless' Avatar
      Shoeless

      Best of luck tomorrow. Even though you root for those darned Packers, I will keep you in my thoughts and prayers - I won't hold that against you. At least not too much.

      over 3 years ago
    • Carol-Charlie's Avatar
      Carol-Charlie

      Hey... Packerbacker... (This MN Vikingbacker) hopes all went well with your Gamma-Knife radiosurgery. I'm praying you're all done with that. Now sleep and rest... At least we don't have to watch all the SuperBowl, if its a boring game... (((((Hugs))))

      over 3 years ago
  • packerbacker's Avatar

    packerbacker asked a questionSarcoma - Adult Soft Tissue Cancer

    Does anything work for bone pain?

    • nancyjac's Avatar
      nancyjac

      What has worked best for me is to keep moving. Lots of stretching.

      over 3 years ago
    • gwendolyn's Avatar
      gwendolyn

      Speak with your oncology office. They can prescribe different meds or localized patches. My mother had a lot of rib pain (multiple myeloma) and it took a few tries for her oncologist to get the situation under control. You need to get some relief.

      over 3 years ago
  • packerbacker's Avatar

    packerbacker shared an experience

    Oh No (Cancer has spread/Metastasized): On 1/14, I had an MRI of my head and neck due to new onset weakness to my left arm, and some left-sided neglect. Well, they found a quarter-sized lesion in my frontal lobe. On Thursday, 1/23, I am having a Gamma-Knife procedure to get rid of the lesion. I will be starting physical therapy/occupational therapy for the weakness, which will probably get worse for a while after the procedure. Frightened about Thursday, no sure what to expect.
    . I also have had pain to my right hip area. So, MRI Wednesday to make sure the metastasis that was there hasn't gotten worse.
    A lot to digest.

    2 Comments
    • LuvinSis' Avatar
      LuvinSis

      Best of luck to you on the gamma-knife procedure. Let us know how you fare!

      over 3 years ago
    • NanaL's Avatar
      NanaL

      I will be keeping you in thoughts and prayer. Please let us know as soon as you are able how you are doing. I can't imagine digesting all of this news at once! Hang tough and I hope all goes well with the procedure. Blessings!

      over 3 years ago
  • packerbacker's Avatar

    packerbacker asked a questionSarcoma - Adult Soft Tissue Cancer

    Does anyone know where to look for stretches for lower back pain from muscle strain or bony mets? Recent back surgery.

    4 answers
    • packerbacker's Avatar
      packerbacker

      Thank you, Nancyjac, for reminding me to check with the doctor. How right you are about further injury. I was just looking for some relief to this pain and I thought some gentle stretches might help. I see a Neuro-Oncologist Monday, and maybe she can refer me for Physical Therapy or something like that. The deconditioning that goes with some of this cancer stuff is very frustrating!

      over 3 years ago
    • carm's Avatar
      carm

      packerbacker,
      I am not sure if your doc talked about pain relief or if you have someone managing your pain issues but, morphine or opioids do not work on bone mets. You might try ibuprofen as NSAIDS are the most effective for that type of pain. Consult your physician. Heat actually creates more pain as heat brings blood flow to the site and increases the throb. Best of luck to you, Carm.

      over 3 years ago
    • LuvinSis' Avatar
      LuvinSis

      A few visits with a physical therapist will help, if you have recently MRI/CT bring those along with the report. They can assess the pain and give you home exercises. Though not a cancer patient is am on disability for severe spine problems both bone-pain based and nerve-pain based. My Pain Mgmt doctor has me on opioid meds as well as over the counter ibuprofen, naproxen (aleve), and aspirin (I alternate between the 3 to save my stomach). And I live for heating pads, I have them all over the house. I can't remember where Menomonee Falls is, but the Marshfield Clinics (branches all over) have a good pain management reputation and one PM practices in Minocqua is well regarded (currently living in AZ but our goal is to possibly get back to central WI, I used to live in Wausau).

      over 3 years ago
  • packerbacker's Avatar

    packerbacker asked a questionSarcoma - Adult Soft Tissue Cancer

    Has anyone had to decide between radiation and brain surgery for brain mets? What did you do and how did you come to your answer?

    • gwendolyn's Avatar
      gwendolyn

      packerbacker, I can't answer your question but wanted to let you know I read it and I'm sorry about your recent development. I hope someone comes along soon to share a similar experience.

      over 3 years ago
    • LuvinSis' Avatar
      LuvinSis

      Where are the mets and how invasive would the brain surgery be? Much of what to consider is the potential side effects (for example, in speech center? Motor control area?) And is surgery minimally invasive with potential of radiation after if needed.

      over 3 years ago
    • packerbacker's Avatar
      packerbacker

      Hi, LuvinSis! I started about 1.5 years ago with a diagnosis of tongue cancer, which, after chemo and radiation revealed a lung lesion, which was removed. After back surgery from a fall, they found bony mets to the right hip also. After more chemo, a Pet scan revealed 6 new sites: 3 in my lung, 1 on 1 of my adrenal glands, 1 lymph node, and another on my tongue. After the lymph node was biopsied, we were just about to start chemo when this arm weakness started. Everything has been on my left side. The lesion found in the frontal lobe is affecting my left arm weakness and coordination and grasp, and I have balance problems, The Gamma-Knife radiation can give me more weakness for a while, but it should resolve. Not much regarding speech problems, some possible memory problems. If I would have a craniotomy, the risks would be greater. They said the tumor is perfect for this Gamma-Knife thing, so we are doing it next Thursday, 1/24.. I shouldn't need further radiation, just chemo for the other sites. I'll keep everyone posted! I'm not giving up the fight yet!

      Thank you for your support wware and LuvinSis! This site really can be helpful and supportive, and it has helped me many times! Thank you WhatNexters!

      over 3 years ago