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Take Me: Home People pallwitz's Profile
  • pallwitz
  • Bondurant, IA
  • Member Since Sep 2012
pallwitz's Avatar

Silver_star_empty
My Goodwill help 31

Their Diagnoses (1)

    • Spouse/Partner: Non-Hodgkin Lymphoma (NHL)
    • Patient Info: Currently in active treatment (initial surgery, receiving chemo rounds/radiation), Diagnosed: over 10 years ago, Male, Age: 45
    • View this journey (1 Experience)

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  • pallwitz's Avatar

    pallwitz started following

    Question: What luck have others had with refractory diffuse large b cell lymphoma?

    • View
    almost 10 years ago
  • pallwitz's Avatar

    pallwitz asked a questionNon-Hodgkin Lymphoma (NHL)

    What luck have others had with refractory diffuse large b cell lymphoma?

    • Answer
    • 4 Answers
    • Share
    almost 10 years ago
    4 answers Progress Indicator
    • Moonflay's Avatar
      Moonflay

      Argh..I'm sorry to hear your husband is not responding to treatment. Have you looked into this?
      http://www.pixrtrial.com/?gclid=CKmltKzrm7ICFWd-TAod01AAKg
      or:
      http://www.uptodate.com/contents/treatment-of-relapsed-or-refractory-diffuse-large-b-cell-lymphoma/abstract/62
      Bone marrow transplant?
      http://www.uptodate.com/contents/treatment-of-relapsed-or-refractory-diffuse-large-b-cell-lymphoma/abstract/68
      Stem cell transplant?
      http://www.uptodate.com/contents/treatment-of-relapsed-or-refractory-diffuse-large-b-cell-lymphoma/abstract/72

      Another article:
      http://www.onclive.com/conference-coverage/winter-hematology/New-Directions-in-RelapsedRefractory-DLBCL

      You mentioned your husband gets "too sick" between treatments. In what way does he get sick? Is it due to the actual treatments?

      Tell your husband that absolutely no one's life is spent waiting to die, there is a purpose, a meaning or transition that applies to all of us. Never give up the good fight!

      /Hugs

      • 0 Like
      almost 10 years ago
    • nobrand's Avatar
      nobrand

      I agree with Moonflay... perhaps the stem cell transplant should be considered? I'm not 100% sure.. I have DLBCL too, but I am still pretty early on in treatment. I know the doctor says that if first line therapy should fail, I would more than likely have the stem cell route.

      Your question hits me home though... there are about 2-3 days between each treatment that I feel like such XXX, I feel that I am too waiting to die. These treatments are so hard on your body, and doubly hard on your mind. I know he is putting up a hard fight for you and your boys, no doubt!

      • 0 Like
      almost 10 years ago
    • pallwitz's Avatar
      pallwitz

      Thank you Moonflay for information on those sites. I will make sure to look at them tonight. We tried to get him into remission and/or free of the disease, but that did not work. His lymphoma grows so fast. Once the drugs get it out of one area it goes into another area of the body. So he was never eligible for a stem cell transplant. He does not get sick from the treatments. He actually does really well and feels great after the treatments. It is when the lymphoma comes back that he feels so sick. All his feeling bad comes from the lymphoma. He is doing better today and has a more positive attitude, which is great. Thank you all again for your encouraging words!

      • 1 Like
      almost 10 years ago
  • pallwitz's Avatar

    pallwitz shared an experience

    Decision Point

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    • View Journey
    almost 10 years ago
  • pallwitz's Avatar

    pallwitz started following

    User: GregP_WN

    • View
    almost 10 years ago

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  1. What is that Goodwill number?

    The Goodwill number is one way you can tell how helpful each WhatNext member has been in providing information that may help others in the network. Someone with a “0” by their name may mean that they are new to the network, while someone with a higher number means that they may have either posted more information in their journey, asked questions and/or provided answers that others may have “liked.” Your number can change daily based on your contributions and involvement.

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