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    papabill wrote on DonnainRI's wall

    Thanks for the encourgement...but sounds as if while you know several who did well on Keytruda, you may know of others who did not fair as well. Keeping my fingers and toes crossed now for both of us as we strive to keep the faith.

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    papabill started following

    Question: A Good Week

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    Terri wrote on papabill's wall

    Hi papa I’ll, thank you for your kind words. I am not on therapy. I have been on 4 clinical trials, iL2 interferon and Yervoy. I am on watch and wait. I am glad you are fighting. I have fought hard. God bless, and good luck on Keytruda, which is about a million times better than any med I have been on. I don’t know why I am still here, but if I can give hope to anybody that is is as good a reason as any. Stay in touch.

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    papabill wrote on Terri's wall

    Hi Terri, just saw your wall post to Mark and wanted to touch base as I was diagnosed Stage IV melanoma in January and then scan and CT biopsy showed tumor now on my liver. On Keytruda but liver tumor has still grown larger. Just had a CT-placed fiducial (gold) beads) placed and now scheduled for CT confirmation of placement to then to start 6 every other days of focused radiation in hopes of destroying the tumor, while still taking every three week (Tuesday) session of Keytruda infusion. . And, on top I thin kl I am now exhibiting side effects from Keytruda as my finger joints, arm and shoulder muscles are sore and tight...as if I pulled muscles after hard labor. Trying to keep it all together and keep the faith at same time. Any thoughts, experience advice beyond that expressed to Mark appreciated in seeing that you are a 9 year survivor and now becoming my hero. Also I gather even after 9 years you are still on some on-going therapy. Thank you. .

    8 Comments
    • Terri's Avatar
      Terri

      Try Bad XXX Melanoma warriors. Google them. I guess I can’t publish my email. What groups are you in?

      4 months ago
    • SandiA's Avatar
      SandiA

      Thanks I’ll try that! I belong to melanoma stage 4 and melanoma warriors. I enjoy both group but recently there were a few in the warriors arguing about NED vs cancer free and it got kinda heated and people were being a little hurtful. The admin did step in and erased a lot of it.

      4 months ago
    • Terri's Avatar
      Terri

      I am sorry that happened. NED is not cancer free sadly. It’s a reprieve.

      4 months ago
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    papabill wrote on RebeccaT's wall

    Hi Rebecca and welcome to WhatNext where you will find both support and answers to many of your questions. I also have melanoma, which was initially diagnosed on my scalp just over two years ago and was melanoma-free for two years until my January scans showed it had spread to my liver. I am now being treated with Keytruda and am being prepared for targeted radiation to destroy the liver tumor. Please check back on the site regularly to learn how others are dealing with their melanoma, ask questions, provide comments as we are all in this battle together. And, should you have any specific questions for me as to my metastatic melanoma, do not hesitate to reach out. Keep the faith.