• papayagirl's Avatar

    papayagirl wrote on JennyMiller's wall

    Hi Jenny and Smishik, I too have lymphedema, the result my lack of attention and a careless nurse taking my blood pressure. My Dr didn't think it was any big deal and that made me feel worse. It was devastating. The thought of having this ailment forever is so hard to bear. Even after a year, I can't seem to accept it. I'm embarrassed to say I have not kept up with the exercises, although I have been better about the sleeve and gauntlet. I haven't noticed any problems, though I think I have a little swelling. I think it is time to see my therapist again. I dread beginning the exercises again.
    I'm sorry to write such a negative post but these are my honest feelings and, if there is anywhere I can be truthful, it is on this blog.
    I honor and admire your faithfulness and self-care. Any tips on how you have overcome your resistance to the exercises would be greatly appreciated. I send you both love and support.

    • JennyMiller's Avatar

      Hi papayagirl -- it has been awhile since I have heard from you. You were such a help to me back in my "dark days". It is so sad how you got Lymphedema -- the nurse certainly should have known better! I agree with you that the thought of having Lymphedema forever is hard to bear. I am also lax in doing the exercises. Once I get the swelling down again, I hope that the sleeve and gauntlet will keep it that way. I am feeling positive after my first appointment with the Therapist. I start next Monday (9/9). I have a feeling that she will educate me and be a great help. I will keep you updated. Thanks so much for your input and support.

      over 7 years ago
    • papayagirl's Avatar

      Hi Jenny, it's so nice to hear from you.
      You mentioned the support you gave me during your "dark days". Well, I can say you helped me three times over! Your blogs were amazing and so helpful to lots of people on this site. It is comforting to know you, too, struggle with the Lymphedema exercises. Now that the fall and winter are coming, it will be cooler to wear the sleeve and gauntlet. I chose a beautiful purple color to make wearing them a little less serious. It helps. I wear so much purple or what goes with it that it is the perfect color for me...a superficial point but anything to brighten the reality of this ailment.
      I'm so glad you are feeling more positive about your situation and feel good about your therapist. The 9th is less than a week now, so your education will begin soon! I'm having trouble picking up that phone to call my therapist but, eventually, I know I will.
      I wish you the best when you go in for your first treatment. I will be rooting for you and sending prayers. So glad you will keep in touch. Love to you, Jenny.

      over 7 years ago
  • papayagirl's Avatar

    papayagirl shared an experience

    Oh No (Diagnosed): I have now been diagnosed with lymphedema Very upsetting.

  • papayagirl's Avatar

    papayagirl posted an update

    It is now a year since I was diagnosed with breast cancer. It was a rough journey but I came through it with a positive attitude and lots of caring by friends.Everything was going along after chemo. I started hormone therapy, got my energy back and began to rebuild my life. Then just 3 weeks ago, my internist's nurse took my blood pressure in the wrong arm. I protested but it was already too late. That's all it took.

    I am very angry and depressed. Has anyone else had these feelings? I have begun treatment but the worst of it is my daily self-massage which I find very difficult and time-consuming. I find myself resisting doing it. I have not begun wearing a sleeve but will soon. I am writing a letter to my Dr telling her of my experience and the resulting consequences which I will have to live with my whole life. I think the nurse should have known better or there should have been an alert on my chart.

    It is all very upsetting and knowing there is no end to it is very discouraging.. I know others live with this condition and I must find my way, too. At the moment, I am just adjusting and very distressed. Please share your feelings, experience and how you manage the daily massage, wearing the sleeve and gauntlet and adjusting your attitude.
    Thank you for putting up with my complaints.

    1 Comment
    • DeanaBeana's Avatar

      I'm very sorry your having these problems. I've never gone through any of this personally. But I have family and friends who have. One of my best friends who is 48 yrs. had a double mastectomy with breast reconstruction and she too suffers from Lymphedema. She couldn't afford the sleeves because her insurance wouldn't cover them. I know the times are difficult for you. I wish there was something I could do to ease your feelings of sadness. Maybe you should post your question you asked in the QUESTIONS tab. This way the community will see and someone will come along and give you some advice and help. There are some wonderful people on the site. Just ask questions and they will help you even if just to talk. I hope today is a better day for you. Best of luck!

      over 8 years ago
  • papayagirl's Avatar

    papayagirl started following

  • papayagirl's Avatar

    papayagirl asked a questionBreast Cancer

    Has anyone heard of any side effects of using Rogaine?

    • carm's Avatar

      Papayagirl, you might want to check out Rogaine on the Skin Deep website. Just type it into the search bar. It does have precautions and one of them is endocrine disruptions. As hormones play a big part in most breast cancers you should look into it, good luck.

      over 8 years ago
    • Nomadicme's Avatar

      I used the stronger men's formula (5% vs 2% monoxidil) and got some serious facial hair which went away after I stopped using (there's a warning about that side effect that comes with the package insert)

      over 8 years ago
  • papayagirl's Avatar