• patrickbruner's Avatar

    patrickbruner shared an experience

    Decision Point (Have to decide if I should go through an autologous stem cell transplant): Im about to go through round 5 and my doctors are recommending that I go through an autologous stem cell transplant afterward, but I'm frightened of the recovery period. Is it absolutely necessary if I'm in remission?

    3 Comments
    • po18guy's Avatar
      po18guy

      Lymphoma is known for relapsing. At least in T-cell lymphomas, autologous transplants are effective if you receive them during your first remission. I am fighting this for the fourth time now. An auto SCT will not cure me and there is no donor known for an allogeneic transplant. You could be in much worse shape, and auto SCTs are not much in comparison to a donor (allogeneic) transplant. At the same time, a second opinion is always a good idea.

      over 6 years ago
    • Schlegel's Avatar
      Schlegel

      A transplant doctor at UNC told me that an autologous transplant would not be any better than chemo. I have follicular lymphoma, so I don't know if this applies to you.

      over 6 years ago
    • po18guy's Avatar
      po18guy

      I have a T-Cell Lymphoma, which is quite a different animal. Follicular is normally viewed as incurable, but also manageable as a chronic illness. One chases it into remission and then lives that remission out, only to have to do again at some point in the future. If you are in remission or close to it, I would stay with treatment as needed, actually. There is quite a group with follicular at www.cancerforums.net
      I am certain that they would be of help to you on your journey.

      over 6 years ago
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