• Pattie's Avatar

    Pattie started following

    User: CancerNews

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    Pattie asked a questionRare Cancers

    due to my apendix cancer I KEEPgetting bowel obstruc. anyone else have this problem?

    • CrazyHarry's Avatar
      CrazyHarry

      Did you have surgery yet? Bowel obstructions are very common side effects of bowel surgery.

      Also for me, the Chemo/radiation of my rectal cancer caused extreme constipation.

      almost 4 years ago
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    Pattie started following

    User: MarkL

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    Pattie asked a questionRare Cancers

    stage 4 cancer moved from my appendix to my uterus, my peritineum of the stomach, & small intenstines should I try HI

    5 answers
    • abrub's Avatar
      abrub

      Meet with Dr. Kane at Roswell Park. He will be able to advise you. And yes, HIPEC or IP chemo (as done at Memorial Sloan Kettering in NYC) is the way to go. I had the IP for stage 4 appendix cancer, with tumors and seeding on my ovary, omentum, peritoneum, colon and small intestines. My surgeon resected my colon in 2 places, my small intestines in one place, and left me with a perfectly normally functioning bowel system (no bag.) (I sing his praises every morning as I sit on the "throne" and perform "normally".)

      I was just chatting with one of Dr. Kane's patients who was stage 4 and is about 4 years out from surgery, doing just fine!

      almost 4 years ago
    • jenpwrs' Avatar
      jenpwrs

      Hi Pattie. Please read over my journey. I've had the surgery and HIPEC twice. My cancer was as advanced as yours is now. My first surgery was ten years ago. HIPEC chemo didn't make me sick. I was hospitalized during this treatment as I was recovering from the surgery. The surgery is very difficult, but you will recover from that. Please feel free to contact me.

      almost 4 years ago
    • maralyn's Avatar
      maralyn

      i just had the HIPEC 5 weeks ago, and i am healing up great, no problems that didn't go away with a few pain pills and a good nap!!! they didn't remove any body parts, just cleaned up what cancer they could and did the heated chemo,,, was home in 10 days, and no complications at all!!! i highly recommend it!!! i pray you find the support and answers you need!!!

      almost 4 years ago
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    Pattie shared an experience

    Loss (Relationship ): After saying goodbye to my 5 children my 2 sisters and my 2 friends and then NOT dying, no one wants anything to do with this anymore, or to have anything more to do with me, I lost all my supports. I am giving up on everything because without people who care if you're alive or dead, I feel and am totally alone and helpless. I hate my life.

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    Pattie shared an experience

    Loss (My mind/Sense of Humor): My family has turned their backs on me. My friends are distant and don't want to deal with me or my dying,

    1 Comment
    • NETsurvivor's Avatar
      NETsurvivor

      I am soo, sooo sorry. I hope you are feeling okay. How are you? I do understand, I have one great son. My other son who lives 30 min away has not been to visit since my surgery day 6 months ago. My last friend to visit was 5 months ago.

      about 3 years ago