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Pdale started following
Question: Newly diagnosed 36 year old
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Pdale wrote on Virginia's wall
A new. Book from Amazon.com for about $15.00 and a used one for $3.00 i,started reading and.
could not put it down. It was so helpful! And this is a great forum to gain knowledge and emotions2 Comments -
Pdale wrote on Virginia's wall
Hi Virginia. I am surprised that your surgeon did not discuss the complete pathology report with you. Just Her 2 positive which normally means a fair amount of time on a drug called Herceptin. It is important to know if your tumor had estrogen receptors (ER) and and Progesterone receptors (PR) or not. I recommend requesting a copy of your pathology report. There is a book entitled Dr. Susan Love's Breast Book. You can purchase
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Pdale posted an update
Just saw a new entry with the following info: triple negative breast cancer. However, Her2 positive was reported as yes, ER positive was reported as don't know and PR positive was also reported as don't know. I don't want to offend anyone, but triple negative breast cancer (TNC) would require a no response to the 3 previous questions. In other words, Her2 positive NO, ER positive NO and PR positive NO. TNC tumors are highly aggressive regardless of their size and are generally treated aggressively. The only good thing I can say about my experience with TNC is I was not subjected to that nasty drug Herceptin.
1 Comment-
GregP_WN
over 5 years agoThere is a lot of information that we have to listen to, and comprehend. A lot of people get so much thrown at them that they don't understand all the + and - and terms. sometimes they don't even know exactly what they have been diagnosed with, happens all the time. We are here to help them through the process and teach what we can by sharing our knowledge of what we have learned along the way. There are lots of cases like this out there. If you can help someone get a clear idea of the terms and help them understand, please do so. That's what makes WhatNext a great place, having all these people to help you through the fight.
Thanks for being with us and I hope you're doing great!
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Pdale wrote on Bmckay114's wall
I am amazed at the number of women who aren't given their pathology and operative reports. They can answer a lot of questions and can aid in planning treatment especially if you change doctors like I did. Ask for them. They are your medical records. Consider investing $15.00 in Dr. Susan Love's Breast Book at Amazon or you could get a used one at Amazon for about $3.00.
