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    Pego asked a questionBreast Cancer

    Lymphedema discomfort

    8 answers
    • 2943's Avatar
      2943

      You might also wish to try to find a LANA trained doctor. Special training in lymphatic issues. One is in the process of treating husband and thing works!

      14 days ago
    • Bug's Avatar
      Bug

      That's what I was wondering... Is the person who taught you how to do the massage someone who is trained in lymphatic massage and drainage? That appears to be really important.

      14 days ago
    • Pego's Avatar
      Pego

      Thank you for your comments. I have seen a physical therapist who works with lymphedema patients. 7 lymph nodes were removed 13 months ago. Thankfully, no fever, redness or other signs of cellulitis.

      13 days ago
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    Pego wrote on LaurieATL's wall

    Hi Laurie!
    I was diagnosed last summer. I just recently found this sight and have found it very helpful. I hope all goes well for you.

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    Pego asked a questionBreast Cancer

    Neck & Shoulder pain after Mastectomy

    4 answers
    • gpgirl70's Avatar
      gpgirl70

      I had to do physical therapy, occupational therapy, lymphedema treatment, and massage. My chest has no feeling most of the time but sometimes it tingles and burns. I use lidocaine when that happens. I get pain on my left side where the removed 25 lymph nodes. Some of that is lymphedema related so I then step up my lymphedema exercises or wear my sleeve.

      I don’t mean to scare you because it really is manageable and gets less bothersome or intense over time. Mention this to your oncologist and they’ll refer you for therapy. I hope you feel better soon. ❤️

      4 months ago
    • legaljen1969's Avatar
      legaljen1969

      Sometimes my shoulder gets a little painful on my left side (the mastectomy side) but it's usually nothing I can't get under control with some stretching and little tylenol or motrin if necessary. Before I had my surgery, I was going to a place called Stretch Zone and got regular stretching twice a week so I was reasonably flexible. I did as much modified stretching and exercise as I could. I often use a yoga strap now to try to get some extra stretches in myself. You, of course, need to check with your doctor or therapist to see what will be best for you.

      4 months ago
    • Pego's Avatar
      Pego

      Thank you for responses. I have seen a physical therapist for lymphedema. We achieved all we could there and concluded the treatments. I do my exercises. I’ve not worn the sleeve a lot recently. I tend to “list” to one side! Right shoulder is higher. Thus the pain in the right neck and shoulder area. This is my greatest pain or frustration!

      gpgirl70, you did not scare me! Or offer too much detail. I’ve come to realize I have a new normal. The numbness and tingling may be with me forever. I had high hopes of beating it back with exercise and massage. I can lessen it, but not make is completely go away. At least not yet. Surgery was 11 months ago. Chemo ended Jan. 20, 2020. Maybe my body needs more time. Maybe this is as good as it gets! Time will tell.

      4 months ago
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    Question: Mastectomy