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    pgrunkemeyer shared an experience

    Celebration (Remission): I was declared in remission in April 2013 and only have to go for annual MRI's now and every six months for urinalysis.

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    pgrunkemeyer shared an experience

    Drug or Chemo Therapy (Chemotherapy): While my oncologist wanted to do a round of the old fashioned chemo, my kidneys wouldn't allow it. He opted on a mixture of taxol and gencitibine (sp). Since the adenocarcinoma is a rate type of cancer, there is not a lot of information on it. I opted for chemo since the cancer had invaded a blood vessel. I never really suffered from nausea. I did lose my hair after my 2nd treatment and suffered aches and pains as well as ongoing fatigue and low blood. I had at least two blood transfusions during the chemo and even six months after finishing chemo had to go for iron infusion and B 12 shots. Having to undergo a radical cystectomy is a major impact on one's life. However being alive outweighs all the inconvenience of wearing a urostomy bag.

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    pgrunkemeyer shared an experience

    Procedure or Surgery (Surgery): By the time I was referred to a urologist/surgeon my only option was a radical cystectomy - removal of my bladder, urethra and part of my vagina. It was during surgery that it was discovered the cancer had actually started in my urethra many months earlier and invaded my bladder - the tumor was a type IV.

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    pgrunkemeyer shared an experience

    Oh No (Misdiagnosed): When I was first diagnosed with a tumor in my bladder, it was felt that it was slow growing and it was suggested that we do a wait and see - then a biopsy confirmed that I had a malignant adenocarcinoma and would need surgery.

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    User: Kingscroft

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    pgrunkemeyer wrote on Kingscroft's wall

    Hi Kingscroft:

    I was diagnosed with an adenocarcinoma in my bladder a little over two years ago. It wasn't until my surgery in August 2011 that it was found that the cancer had actually started in my urethra months before and invaded my bladder. At the time of my surgery the tumor was a type IV. The choice I was given by my urologist/surgeon here at Emory University Hospital Atlanta was to have a radical cystectomy whereby my bladder, urethra and part of my vagina were removed. Not an easy choice but at this stage of my cancer the only choice I had. While having a urostomy has been quite an adjustment and lifestyle change it is better than death. I deal with this very well now. I was 65 when the surgery was performed. I went through 3 months of chemo after the surgery as the cancer had invaded a blood vessel. I was told as an adenocarcinoma is a rare cancer there is not a lot of history with it. I finished chemo a year ago February. Last year I went for MRI's every 3 months and have now been declared in remission and only have to go annually. Within the past 3 months, I have started feeling much better and am able to do regular rigorous exercises. It is good to be pain free. I hope your doctor has your best interests at heart and knows the best path to take. I wish you well in this journey.

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      Kingscroft

      That's great news for you, thanks for sharing your story of hope, it helps. I'm a caregiver, I haven't been able to help so much yet, we are still waiting for treatment to begin.

      almost 4 years ago