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    Question: Muscle fatigue!!

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    User: dan7264

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    PhaedraB asked a questionNon-Hodgkin Lymphoma (NHL)

    How do they count the years?

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    • dan7264's Avatar
      dan7264

      I have the same as you. Diagnosed in April, but I knew a year ago that something was causing fatigue, nausea at time, night sweats but not all the time, rapid weight loss then I would gain it back. I had a persistent dry cough from the lymph nodes involved around my esophagus and diaphragm push in that they caused a tickle that made be cough. We thought it was allergies, or acid reflux, then we suspected a hiatal hernia, something was pressing on my diaphragm. I recall these symptoms for at least three years or longer. With the follicular, indolent, b-cell lymphoma it is so slow growing it is hard to tell how long I lived with it.

      How are you feeling now? What was your treatment? What maintenance drug are you on?

      almost 9 years ago
    • PhaedraB's Avatar
      PhaedraB

      Dan, I am on maintenance Rituxan, and will be for the next 18 months or so.

      My symptoms were recurrent low-grade fevers with severe fatigue, sometimes for weeks at a time, and sometimes with noticeably swollen lumps in my neck. For eight years, they told me I had some kind of infection, maybe a virus, and it would go away. Ah, well.

      Now, I have my ups and downs, and although the downs are nowhere near as bad as they used to be even six months ago, the ups are not as high as I'd like, either. I still have a lot of fatigue, and still get fevers on and off. And of course, just as I start to feel really myself again, it's time for another treatment. So it goes.

      One improvement that I have really noticed, is with my breathing. I was having a lot of shortness of breath pre-diagnosis, but I thought maybe I was just out of shape. My GP gave me an inhaler on the chance it was asthma, but it didn't help. However, when they started doing all the scans, they showed a whole lot of enlarged nodes around my throat and lungs. Since treatment, the scan is clean and my breathing is much better, even though I'm more out of shape than ever!

      Funny thing, I have a cough that sounds very similar to what you describe. But I've had that for decades, and so has one of my sisters. Same variety of diagnoses: allergies, acid reflux, you name it. Neither of us has found anything that helps, particularly, and it does get worse with stress. I've noticed no change in it since beginning the treatment, so mine at least doesn't seem to be connected to the lymphoma. At least I hope it isn't, because if it is, it doesn't bode well for my sister. I'd be interested to hear if yours gets better.

      almost 9 years ago
    • PhaedraB's Avatar
      PhaedraB

      On random symptoms, I had night sweats, too, but no medical practitioner is going to look at a woman my age, hear night sweats, and think anything but menopause!

      almost 9 years ago