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    PhilThompson shared an experience

    Procedure or Surgery

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    PhilThompson posted an update

    I have read so many different things regarding 5 year survival rate of Small Intestine Cancer. My Oncologist is confident my 5 year prognosis of survival is good. However, I want specifcs...I want a %. I am very black and white this way. My tumor was Stage 3,..thank God it did not spread to other organs.
    After 6 months of chemo to make sure it was not in 'nodes...I now find myself consumed with the fear of the unknown...going crazy avoiding any food that is processed...and reading article after article on internet. Many of these sites suggest anywhere from a 35% to 55% 5 year survival rate, even when the tumor was successfully removed. Adenocarcinoma of Small Intestine is rare, and fairly aggressive apparently. Does anyone have good information on survival rates and how best to deal with this post chemo "consumption" of the disease. It now occupies my mind 24/7....which I know is not healthy.

    Thanks. Any input is welcome.
    Phil

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    • MelanieP's Avatar
      MelanieP

      Please keep me informed of what you find. My husband, who is only 35, will be having laparoscopic surgery on the 16th of November to check for more tumors in his small intenstines. They found a very small tumor (0.6 cm) in the section of intestines they took out during a different surgery. They informed us that CAT scans and colonoscopies wouldn't show about 50% of the area they need to check. Really scared.

      about 4 years ago
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    PhilThompson shared an experience

    Side Effects

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    • PhilThompson's Avatar
      PhilThompson

      I completed 6 months of chemo just a few weeks ago for cancer of the small intestine. Rare..especially for someone in mid 40's. I seriously underestimated the mental impact of Post Chemo. My attitude and outlook during chemo was ultra positive. For some reason I now feel the fear of the unknown sinking in. Fear of it's return..and frustration with continued side effects...and most of all Cancer's impact on my relationship with my girlfriend of two years. Everyone..including me...expected the "Normal Phil" to be back pretty quick. I'm not sure what "normal" is at this point. Advice on dealing with the challenges of post-chemo?

      over 4 years ago
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    PhilThompson started following

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