• Lynne-I-Am's Avatar

    Lynne-I-Am wrote on Piebaby's wall

    Four years since ending chemo, I was wondering how you are doing. I know you have not posted, but , hope you periodically drop by to read what's going on. I wish you a good 2017, Piebaby.

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    Piebaby shared an experience

    Celebration (Finished treatment): When you take that last Chemo treatment....it's like a celebration. "I did it"...you feel like you won a marathon, or it's your birthday, ...You actually won the "LIFE" lottery. YOur hair is starting to grown back, you lab's are looking good, good and there's no evidence of disease anymore. Sucess is yours!!! Now just take the time to heal, and get your strenght back. Continue seeing the doctors and lab on a regular basis, and pray for complete remission. If you have port, they'll probably want you to keep that in for a year., so you'll have to go get it flushed every 6 weeks...no biggie...compared to what you've been thru, right? Spend your next 6 months gettng stronger, walk for exercise. It's easy to do, you get fresh air, and even if its only around the block, it feels good to get out. HORRAY...YOU'VE DONE IT.

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    Piebaby shared an experience

    Other Care (Home care): When you're in the throws of chemotherapy from ovarian cancer, you really need help. Help, showering, fixing meals, driving you to appointments, keeping your medicine logs straight, and making sure you're talking the right medication at the right time. This is a 4-5 month procedure, and maybe longer, depending on your receptiveness to the drugs in your chemo-cocktail asthey call it.
    So be smart, and line up friends and family members, to put together a schedule of care of care for you, from cleaning house, to doing laundry, grocery shopping, taking care of your kids, it that's in the picture, helping your spouse out as much as possible, and giving the major caregiver in the house a break once or twice a week. Remember that caregiver whos with you all the time, is a 24/7 person who's in this right along with you...Remember..there's always more than ONE PATIENT IN THE ROOM, whena family member has cancer.

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    Piebaby shared an experience

    Side Effects (Chemo brain): Chemo brain is something that happens to women being treated for ovarian cancer with chemotherapy. Chemo drugs are the onlyone that they know of that bridge the blood-brain barrier, and because of this, the chemo drugs effect ones cognative thinking skills. Difficut writing, spelling, working w/ numbers, remembering things, remembering the names ofthings, or calling things by the wrong name,..not usually people, but you might call a apple a shoe, and not even know you said it. They say it can last us to 9 years after treatment, but my subsided after 4 years. Doctors dont' tell you about this, becasue they're still not sure it really exists....but I'm here ..along with million of other survivors to tell you it does exist, and it's wierd....just know when you're confused, having trouble being on time, or remembering dates, or staying on a schedule...it's not just you, it's our chemo-brain at work...... Learn to write everything down....

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    Piebaby shared an experience

    Drug or Chemo Therapy (Chemotherapy): My Chemo therapy consisted of a 5-6 hr. treatment , then off for 3 weeks,then return at week 4 and start all over again, returning for fluid replinishment every 2-3 days for the first 10 days following checotherapy. My hair fell out after the first treatment. And after learing how to use the drugs for pain, diarrhea, and vomiting, as each week went by, it became easier to control the symptoms. by the 3rd week after a treatment, I was actually able to get up, dressed, and work at my home office..and actually feel weak, but close to normal. It was wierd ...the things you can and can't eat, or dont' want to eat. Don't alway want to eat yourfavorite foods when you have chemo...becasue by the time you're finishe...your favorite foods....you won't be able to look at them without thinkiing about how sick you were during chemo. My best advise, is "imbrace" the drugs they give you to take, make a log, and take them faithfull...these medical professionals deal with chemo aftermath on a regular basis,....so do what they say, and take the drugs as prescribed, it will really help.

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    Piebaby shared an experience

    Procedure or Surgery (Debulking surgery): My recovering from the Mastectomy was not too eventful, except I was horribly allergic to the tapes they used, so rather than tape, I was bandaged, and ace bandaged for 3 months. Drains plugged, and had to be replaced. I was allergic to the antibiotic they gave me after surgery, and developed an abcess in my colon (there was no way to know I would be allergic to that medication, I'd never taken it before).
    So, I was dealing with recovering fom the mastectomy, being totally lopsided, and learing how to sleep comfortably with a pillow under my surgery site to balance me when I slept on my stomach... And then getting the abscess in the colon better..that look some time and a avery expensive drug that could only be purchased in a couple of places in town, and it was so expensive (because it was used on transplant patients) I had to pay up front for it and then wait for my insurance to reimburse me....which took months... Another night mare.