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    pigeon posted an update

    Others ask me why I use local doctors and treatment rather than going to the cancer centers that advertise on tv. Is anyone aware of advantages of going to a cancer center versus local doctor who is credentialed with large cancer hospital in Houston? Are the cancer center treatments more successful. They give their own stats about survival but is there a way to find out the truth? Just wondering because I have had to defend my choice to stay local.

    1 Comment
    • miscyn57's Avatar
      miscyn57

      My mother is being treated for AML at MD Anderson in Houston. The reason we went there vs. staying local is that MD Anderson has access to more and new treatments for the different types of cancer. It's a personal choice. You shouldn't have to defend your choice of treatment. especially if you have a medical team that you trust. My dad has just been diagnosed with a cancer the doctors here cannot pinpoint, so he's on his way to MD Anderson for a definite diagnosis. My mother just finished her second round of chemo and is doing well. Now my parents will be together, fighting this disease, in the same city. Very odd they have been diagnosed within months of each other. But we have found a very positive and hopeful atmosphere at MD Anderson and that's our choice.

      over 4 years ago
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    pigeon asked a questionBone Cancer

    Is it ever good to use a masectomy arm for blood pressure, taking blood or allowing it to be used for chemo?

    7 answers
    • teddyfuzz's Avatar
      teddyfuzz

      I was told that which arm to use had more to do with the removal of lymph nodes and not the removal of the breast. I had a bilateral mastectomy with lymph nodes removed on the left side. So far I haven't had any problems with blood pressure being taken on the right side but it's only been a month since surgery.

      I agree with leepenn-if you don't have a good feeling about something there is usually a reason for it. Go with your gut. Best wishes to you:)

      almost 5 years ago
    • pigeon's Avatar
      pigeon

      Thanks to all for answering... not sure how much chemo at this time... anywhere from 2 to 6 treatments... guess my "gut" is telling me not to use that arm because lymph nodes were removed on that side and I've never had problem with lymphedema but don't want to start after 20 years...

      almost 5 years ago
    • liznesh's Avatar
      liznesh

      I don't have an answer as far as mastectomy arm, but my bone cancer was in my arm and have never felt comfortable having blood drawn or blood pressure taken from it. Lots of muscle tissue and lymph nodes were taken out of it. I always use my "good" arm.

      about 4 years ago
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    pigeon posted an update

    I was taken by surprise that I had to start chemo. Taxotere. The hormones had been working very well but several weeks ago I began hurting and having trouble walking again and having to use a cane. No cure for the bone mets and anywhere from 2 to 6 chemo treatments 3 weeks apart. First treatment well tolerated and I have been able to work most days but I do have a flexible work environment. Actually, an accountant for a health system. WhatNext has been good for me because just reading the questions many times has helped me to know what I was experiencing is just part of it! Just knowing others are going thru the same thing does have some consolation to help me know I am still "somewhat" normal. That's all I want to be. Normal. I look at people who walk without even thinking about it (most people actually) and I wonder why I can't just stand and walk without leaning to the right and having to use a cane to balance myself. I used to be that way and never even gave a thought to those whose lives may not be "normal". Now I'm very much aware of another world because of WhatNext and the things that so many are going thru. Thanks to all for questions, answers, words of encouragement and such deep insights into your lives. I learn from so many of you.

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    pigeon started following

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    pigeon asked a questionBone Cancer

    How is oral chemo handled and what are the side effects?

    6 answers
    • Karen4's Avatar
      Karen4

      I'm on Revlimid which I take at night. That was suggested since it can have some side effects which include fatigue. Sometimes I get a little tingling in my hands and feet, but thankfully it goes away. My skin is really dry, so that's something I'm trying to manage with the right combination of oils and other 'greasy' mediums, but it remains a challenge. Now that winter weather is setting in, it will be even more of a challenge.

      Now, prior to my stem cell transplant, I was on oral chemo consisting of Revlimid, Thalomid and Dexamethasone. The first two caused fatigue, but the DEXA--oooh, the Dexa-I hate it because it made me stupid, ansty, unable to sleep without a sleeping aid, and then the crash an burn on the days I came off of it were just as bad. It's a kicker and I hope I never, ever have to take it again! However, it seems to be a part of just about all chemo regimes, at least from those I have talked to with blood cancers similar to mine.

      Like a previous answer I read-it depends on what chemo you will be taking what the side effects will be, and your oncologist should be explaining all that to you. I know mine gave me print outs of information about each of my meds, but I wouldalways go and look up more information on the internet, but only sites I felt were reliable, so be careful what you read. Ask your doctor or nurse for more information. Providing that information to you up front should be standard practice, but it not, ASK. Never be afraid to ask your care team for whatever it is you need. You are fighting cancer-there are no stupid questions, and it's ok to be a pest!!! It's YOUR life and YOUR treatment. As it says in the LIVESTRONG manifesto-knowledge is power! The more you know, the better, then you know what to focus on and what your options are. Good luck! (If you give us the names of the drugs you'll be on, we can help a little more with anecdotal information.) Hang in there!

      about 5 years ago
    • Amanda30's Avatar
      Amanda30

      I take Etoposide 100 mg every day for 21 days, and then 7 days off. My side effects are fatigue, anemia, and very mild nausea. This capsule form of treatment has been much easier than when I was getting chemo via IV every 3 weeks and took a week to recover. I am still fatigued, but I am able to work and do light cleaning and light exercise.

      about 5 years ago
    • susie81610's Avatar
      susie81610

      Iam on Xeloda also on I.V chemo Her2 and forget the other but my side effects are very slight. Xeloda 14 days on 7 days off. Of course I'm a little more tired and my hair is thinning but other than that not bad. So try to wait and see what your side effects are before getting worried about them. Good Luck to you.

      about 5 years ago
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    pigeon shared an experience

    Drug or Chemo Therapy (Chemotherapy): 4 treatments at this time. I think the side effects are beginning to build up after each treatment. Out of work for two days at treatment time but thankfully able to continue working after that.