• GregP_WN's Avatar

    GregP_WN wrote on Pinkldreno's wall

    Hello and welcome, we are sorry for your diagnosis, but we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page, Take a look at it to get you started on some information. You will notice at the left side of that page a listing of most types of cancer. You can scroll down to find your diagnosis. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

    https://www.whatnext.com/conditions/cancer/

    If you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

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    GregP 3X Survivor
    WhatNext Community Mgr

  • Pinkldreno's Avatar

    Pinkldreno shared an experience

    Side Effects (Fatigue (tiredness)): the fatigue is ridiculous. And it's difficult to know if it's still fatigue caused by the long-term side effects of chemo and radiation or if it's fibromyalgia or chronic fatigue. But what's most difficult is trying to find a doctor that can help you resolve this issue. It prevents me from functioning normally let alone trying to keep full-time job.

  • Pinkldreno's Avatar

    Pinkldreno shared an experience

    Side Effects (Chemo brain): I was an extremely detailed oriented individual prior to treatment and haven't been able to regain much clarity since the treatment. Now that I'm four plus years out it seems to be getting worse.

  • Pinkldreno's Avatar

    Pinkldreno shared an experience

    Side Effects (Bone thinning (osteoporosis)): Apparently the combination of chemo and radiatiion caused significant Bone thinning

  • Pinkldreno's Avatar

    Pinkldreno shared an experience

    Radiation (Radiation and chemotherapy together): Because once again at the sensitivity of the vaginal and rectal area the impact of the radiation was very severe. Basically it was when big burnt blister for nearly two months.

    1 Comment
    • SuzieQQ's Avatar
      SuzieQQ

      Pinkldreno....I completed chemo and radiation for anal cancer about 6 months ago. My cancer was stage 1. Even though I only had 2 rounds of chemo, it nearly killed me. I also had 27 radiation treatments. I did not have the surgery. At this time, my side effects are minimal...bowel habits are the worse....I'm curious as to what stage cancer you had and how many treatments. I also got sepsis after the final treatment...7 days in the hospital with blood transfusions and bone marrow shots, followed by 2 bouts of cdiff....Not a very pleasant experience! I wish you the best!

      about 1 month ago
  • Pinkldreno's Avatar

    Pinkldreno shared an experience

    Drug or Chemo Therapy (Chemotherapy and radiation combined): The combination of chemo and radiation just after surgery was very difficult to deal with. It's such a very sensitive area in the pain was it x unbearable.