• GregP_WN's Avatar

    GregP_WN wrote on Pjb's wall

    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/esophagus-esophageal-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

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    WhatNext Community Mgr.

  • chiefomni's Avatar

    chiefomni wrote on Pjb's wall

    The Esophageal Cancer Education Foundation www.fightec.org has Conference Call Support Group Meetings on a monthly basis in the evening for recurrence patients. If you think you would like to participate look at their web site

  • BoiseB's Avatar

    BoiseB wrote on Pjb's wall

    I have already introduced my self on your recovery. So I will just say that I have twice been handed a death sentence. When I was first diagnosed with EC I was told I had 4 to 9 months to live. That was 7 years ago.

  • Pjb's Avatar
  • Pjb's Avatar

    Pjb asked a questionEsophagus (Esophageal) Cancer

    Curious about typical amount of time needed to recover from surgery

    17 answers
    • Pjb's Avatar
      Pjb

      I have been taking some medication because of pain, but thankfully I've been able to start reducing those meds in the past 3 weeks. The last meds that I am trying to reduce was Gabapentin. I didn't realize in some cases it can help with numbness. I have an appt with Neurologist, and I'm hoping they don't automatically blame my numbness on diabetes. I've had well controlled diabetes for 15 years, no complications, and I'm wary of Doctors just choosing that as an easy diagnoses.

      3 days ago
    • BoiseB's Avatar
      BoiseB

      Pjb don't completely rule out diabetes cancer sometimes causes our other illnesses to get out of hand. My neurologist actually told that my pain and numbness were a combination of cancer and previous illness I am on gabapentin 2400mgs daily for life.

      3 days ago
    • BarbarainBham's Avatar
      BarbarainBham

      Pjb, please remember to ask for the extra bloodwork. I also had a partial gastrectomy and learned if you take medicine for gastric reflux, that it decreases your magnesium, which can make you feel tired. As Jenvivace posted above, we don't absorb everything the same now, plus we may not eat the same diet we used to.

      I also think if your legs are collapsing or feeling like it, you need to tell your doctors asap and find out why. Be sure you eat enough protein for muscles. I often drink a High Protein Boost drink before bedtime for extra protein. Best wishes.

      3 days ago
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