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    plumbermullins wrote on chiefomni's wall

    I too have survived EC 18 years major surgery esophajectomy w/ gastric pull. The complications they don't know or tell you about is what trips you up. what to eat and how much, the hernia's nerve damage, I'm surviving not complaining I thank God every day I wish I could spend more time helping out survivors but work gets in the way. I also will answer any questions sent.

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      chiefomni

      we have a book called "Esophagectomy Post Surgical Guide Questions & Answers that we published last year. Patients tell us it has been helpful in their post surgical journey.

      over 2 years ago
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      chiefomni

      We have a support group of patients and caregivers that meets by conference call once a month. if you would like to participate go to www.fightec.org and join. no chagrge ever

      over 2 years ago
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    plumbermullins wrote on CantonJon's wall

    Jon hang in there ask the hospital for other options of coverage or nutrition. I had 95% of my esophagus removed in sept of 95 and i still here no rad or chemo just surgery did you have any esophagus removed I can help with what to expect. Just went thru my 2nd hernia surgery on the 17 possibly related to surgery in 95. hang in there you'll make it think positive.

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      CantonJon

      I did not have my esophagus removed. I had chemo and radiation. The radiation scarring has shrunk the esophagus and caused the need for the g-tube. So far the hospital has not been helpful in finding other means of paying for the enteral nutrition.

      over 3 years ago
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