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    pmkassab wrote on dvdbriansr's wall

    Hi - I saw your post regarding chronic pain and choosing not to opt in on cancer treatment. I have had chronic neck, back, arm and leg pain for the past 30 years. It has gotten progressively worse with 3 spinal fusions in my neck along with a titanium plate. I have gone every route surgery, meds of all kinds, PT, accupunture, deep tissue massage, cupping, biofeedback, meditation and yoga - you name it I have tried it. I even attended a 10 week Functional Recovery /Pain Management program last year. What I have learned through all this is the pain is going to be present. I understand your frustration and depression with the weight you carry dealing with pain continuously. I would really recommend you find doctors that will work with you on how to best manage your pain so you can live a more "functional" life. I don't know the nature of your pain, so I don't want to overstep but part of our program involved a psychologist that worked not only on "accepting your pain" but on different methods to alleviate and cope with your pain. I hope you might find someone - possibly a Physical Medicine specialist to help. Be careful of those billed as Pain Specialists - many are anesthesiologists by training and so they are more geared to prescibing drugs, then longer term solutions.
    On to my cancer. I was diagnosed about 4 months ago with breast cancer. I had two surgical procedures followed by a course of radiation which I just finished two weeks ago.
    I don't think we can compare what we have done to what you might do. it is like comparing pain. Only you know what you are dealing with. And as others have said, it is ALWAYS your option to opt in or out of any treatment. But, you owe it to yourself to find out your options and be educated in your decison.
    I wish you the best. Please keep us posted.

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      dvdbriansr

      pmkassab: sounds like your a vet when it comes to pain management also. I've been dealing with it for about +35 years, so I know what you mean about trying everything and anything. It's not that I had already decided NOT to accept treatment, but, was in the information gathering/decision making process, and still shocked out of my mind state. The only way I could get a different pain doc was to see a ortho-surgeon first. He recommended a radical new surgical/inplant procedure that I just wasn't willing to submit to, please enough failed surgeries is enough! However it seems that I've gotten around the pain doc delemia any way as my oncologist/chemo therapist has decided to take over my pain management both pre and post cancer diagnosis. The ONLY good thing to come out of all of this. Since she has promised that she would be certain to put an end to the 'severe' pain, during and after treatment, and now knowing somewhat more about my cancer and the proposed treatment plan and chances of eradicating it, I've decided that I DO have the responsibility to my wife, son and grand children to accept treatment and 'try' to stay around for them. It would also be nice to see my GREAT grand children too.

      over 4 years ago
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      pmkassab

      So glad things are looking a bit better. That intial diagnosis is like a slap in the face and takes time and information to adjust to. And, I don't think there are any coincidences in life, so maybe you are going through the cancer and chemo to get to an oncologist that understands pain management and will get you to the right treatment and doctors. Seems a tough way to get there but..... Hopefully it will get you to a better place able to enjoy those grandchildren! Please keep us posted on your progress. And remember in the middle of the treatment if it is getting to you to try to focus on the end game. Take care!

      over 4 years ago
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