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    PrincessTieDye asked a questionLung Cancer

    I have hyper nerve endings and uncontrollable itching all over my body - this happened last chemo about the same time last week of chemo.

    11 answers
    • waynej's Avatar
      waynej

      I too have severe itching, I am using gold bond anti-itch lotion, stops the itch within minutes, I have also used Sarna but I think gold bond works better for me.Good luck.

      almost 5 years ago
    • BelindaY-T's Avatar
      BelindaY-T

      My husband has had this itching all over his upper torso which began at least 10 years after he had chemo and radiation on his chest for Hodgkins. Months after the itching excruciating, burning pain set in and he could not wear a shirt. Even the wind was excruciating to him so he is now housebound. Nothing has seemed to help and he has been suffering for 4 years now being treated at a hospital pain clinic. Only pain meds seem to take the edge off. We've seen every kind of doctor from dermatologists to neurologists and no one has seen anything quite like it. There is a device coming from Europe in a few months to the US that is especially for nerve pain and gets implanted in the back. Works differently than a spinal nerve stimulator which he has also tried and does not work. I suggest you ask a major university hospital about this special devise as well. We have been down every road imaginable and are not convinced there are any easy answers yet. Good luck

      over 3 years ago
    • Loridenise's Avatar
      Loridenise

      Severe itching began in my 5th round of chemo. I have tried everything - 4 prescriptions and every anti itch medicine on the market! Finally, I found that essential oils work the best. Frankincense and Myrrh seem to be the key. I tried lavender and lemongrass in the very beginning of my severe itch break outs but the did not work but then decided to try again with the F&M... this has helped tremendously! Ice packs also help with some relief.

      about 1 year ago
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    PrincessTieDye posted an update

    This is definitely a Manic Monday....third week since last chemo (#2) and my nerve-endings are on fire everywhere in my body. I itch like crazy and NOTHING works... I hate this part of it - it happened last chemo too... Dr doesn't believe it has anything to do with the chemo - BUT I DO. Kind of a coincidence if you ask me..... Help me make it ..... please THIS IS THE WORST PART of the entire ordeal. I can't stand it. Has anyone else had something similar???? If I scratch an itch - it burns and itches 100x's more...... nothing helps, benedryl, creams nothing!!! I take it back - Lorazepam helps - but it puts me to sleep. Just needed to vent today - sorry. <3 Big Hugs everyone.....

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    PrincessTieDye posted an update

    First round of Carboplatin and Paciltaxel completed Monday 9/24. One day after - started feeling the tingling in finger tips and toes... Today - entire feet and 1st joint of fingers tingling... Recommendation by Onc Nurse - Vitamin B6 100 ml and Glutamine powder 10oz 3x day with 8oz water. Gonna try it... will keep you posted. She sent an email to Oncologist yesterday - no word yet from him... have appt with Dr on 12th and then (at least scheduled) 2nd dose on 15th. 1st 3 days are so were worst for me so far... very painful in joints.. now 8th day feel pretty good except for tingling. Feels like I have walked and played in the snow with no shoes an no gloves - Hopefully it will get better. Prayers and healing energy to all!!!! <3

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    PrincessTieDye posted an update

    Appointment with oncologist went well. I have non-small cell lung cancer - mass is the size of a large grape, left upper lobe. Bronchial biopsy confirmed had spread to lymph nodes on left side. Chemotherapy class "Understanding Chemo" on 9/18/12, and the first of my four doses begins 9/24/12. Looking at 4-5 months of treatment. After treatment then surgery to remove the mass. Let's do this!!!!! Big Hugs Everyone!!!! <3 (<~ that is a heart!)

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