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    Ps8285 asked a questionEndometrial (Uterine) Cancer

    Faslodex injections side effects

    • GregP_WN's Avatar
      GregP_WN

      Sorry that you're having these issues. There are people on the site taking that drug, I remember it being discussed. I can't remember the details about side effects from it, however. While you're waiting for someone to answer with the most recent experiences, you can look in the tab at the top of the page that says "Experiences". Click on that tab, then enter the name of the drug in the search bar and our program will give you all of the instances where it was talked about on the website. It's a pretty cool feature for finding information about any topic.

      I hope you get relief soon.

      over 1 year ago
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    Ps8285 asked a questionEndometrial (Uterine) Cancer

    Megase (MEGESTROL ACETATE)

    • Bewell1's Avatar
      Bewell1

      My partner took Megace in the early years of his HIV infection.
      It helped improve his appetite with some weight gain which was needed.

      almost 2 years ago
    • Ps8285's Avatar
      Ps8285

      Any side affects like blood clots or high blood sugar, etc?

      almost 2 years ago
    • Bostonian's Avatar
      Bostonian (Best Answer!)

      Had blood clots in lungs. Drs. could find no other reason than Magace.

      almost 2 years ago
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    Ps8285 asked a questionEndometrial (Uterine) Cancer

    Lymphedema

    8 answers
    • Ps8285's Avatar
      Ps8285

      Thanks MissWiz. I’ve noticed that docs know very little about this. I just read that staying hydrated helps. You are correct. Lasix would be counterproductive. And when I think about it...while I was taking it the condition worsened. I found an excellent video on you tube that describes the breathing exercises and self massage so I’m trying to get it all figured out. Now I’m trying to decide on compression socks that I want to actually wear. It’s quite confusing. The wrapping is going good so far. It’s annoying but I’m seeing results. I’m contemplating that compression suit. My partner had breast cancer and slight lymphedema so we could both use it. Thanks so much for all the great info

      over 2 years ago
    • Ps8285's Avatar
      Ps8285

      I went for a total of 12 treatments (wrapping and massage) and it has greatly improved. The pool has helped a lot also. Doe anyone know if Medicare covers the expensive compression stockings? Finding comfortable ones that don’t leave a ridge has been a challenge for me. Be sure to use a therapist who is trained and certified in lymphedema. I finally had to demand one particular person. It made all the difference. So I’m hoping to be able to manage it without any additional treatment or big flare ups. Once again a shout out to Ivy and MissWiz. You guys helped so much. One more thing..I’m still getting a nerve pain intermittently in the same ankle where the flare up began. Has anyone had luck with anything to treat that?

      over 2 years ago
    • MissWiz's Avatar
      MissWiz

      Ps8285 The nerve pain for me has been in my toes, which just started a few months ago, and is especially bad in my right foot. I'm on my feet all night during my 12 hr shifts. I have just started taking Gabapentin (Neurontin). I am only taking 100mgs and will increase if needed. I hate taking medications but couldn't take the pain anymore. It seems to be helping. Only problem is it makes me sleepy so can only take it at bedtime. Yoga has also helped with my joint pain and swelling.

      over 2 years ago