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    Psychgirl shared an experience

    Decision Point: After I finished chemo, the big question was whether to have further surgery or do maintenance therapy with the Alimta. I decided not to do either one. I have tumors by my lung that may cause pleural effusion (I've had 5 thoracentesis procedures), and one large "mass" by my ovary. However, the doctors explained the tumors may be "dead" meaning the chemo killed the cells and the tumors may not cause any more symptoms. So I decided against surgery or more chemo for at least the time being. I have a CT in three months unless symptoms return.

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    Psychgirl shared an experience

    Drug or Chemo Therapy (Chemotherapy): Chemo wasn't too bad. I had cisplatin and alimta. First couple rounds weren't bad, but they did get worse. I had 6 rounds, 3 weeks apart. I just finished a month ago. I was very tired and lost my appetite. The nausea was well controlled with medication.

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    Oh No (Diagnosed): I read online statistics regarding mesothelioma. I researched everything and would just break down and cry each time.

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    Procedure or Surgery (Surgery): When I went into surgery, they thought I had a benign series of cysts by my ovary and prepared to do a partial hysterectomy. There was a slight chance of ovarian cancer. It took forever to get test results and when they did come in, it was malignant peritoneal mesothelioma. The doctor/surgeon was shocked. Next step, seeing a specialist at University of WI- Madison.

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    • JudiW's Avatar
      JudiW

      I just had surgery for the same diagnosis and my surgeon was quit surprised also!! This was at U.of Colorado. I am still post-op at 7 weeks and have drainage from one area. But, it is getting better and praise the Lord for that. Since my surgery was so extensive tumor in pelvis both sides and went around my colon and had gone to my ometum they took all of that out. I am waiting to see if I have a reocurrance and when to see about chemo.
      We are going to follow with CT scans or PET scans. I think its wonderful you hae been free for two years keep up the good work.

      about 2 years ago
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    User: GregP_WN