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    ready4nascar asked a questionBladder Cancer

    I am wondering also about a cancer center and they did not get all of my tumor out either. Thats whay I am in chemo . I

    4 answers
    • ready4nascar's Avatar
      ready4nascar

      IDec. 2nd is when I found out I had a tumor in my bladder and then they did a scope ,then shaved out the tumor but it was also in the wall of my bladder. They started me on chemo and have had 2 sessions so farand will have about 6 more before I have surgery. The options they gave me was bag on the outside,the Indiana pouch which is in the inside with a small port to empty out urine about 5-6 times a day or the reconstruction bladder

      over 2 years ago
    • calypsois' Avatar
      calypsois

      1. Where are you going for your surgery and chemo? A major cancer center, I'm hoping? It is so very important to have the best. Bladder cancer is very sneaky and you want to get this as right as possible now. I'm assuming you are T2? and, maybe G3? I was T2G3 after my last cysto before my RC. Turned out, I was T3G3N1 afterwards. Not meaning to scare you, but I'm really glad I have one of the best and at Cleveland Clinic. Per US News, CC is: #2 in urology and #9 in cancer in the country.
      2. It seems that the big majority of RC patients are quite happy with their diversion choice, regardless of what it is. I have the Indiana Pouch. My pouch and I get along just fine. i just didn't think I could do the "bag" and turns out we may not have been so compatible. I have tape allergies, and may have had troubles with the adhesives used to attach the "bag". I do have friends who are quite happy with their "luggage" and have active lifestyles. (There was no "." at the end of your post, so I'm not sure if I'm seeing it all. The last of what I see is: "The options they gave me was bag on the outside,the Indiana pouch which is in the inside with a small port to empty out urine about 5-6 times a day or the reconstruction bladder"). So, If your question is what diversion shall I select, I guess I haven't a definite answer. Go with what the facts tell you and then let "your gut" have a big part in it. I didn't have the opportunity to select a neo (bad urethra), but all the facts presented - and "my gut" - I chose the IP, and very happy I did. Let me know if I can help more.

      about 2 years ago
    • leroy's Avatar
      leroy

      I'n going for my 6th operation since march 2012.Tumors are what they call on a fast track.Tumors come back so fast with in days after they removed them. also get cemo treatment. They tell me it's hard to get the tumors under control.We will get the tumors under control along with cemo. when under control you need to be checked every three months to see if the cancer has returned.THIS IS NOT NORMAL FOR TUMORS TO GROW SO FAST, BUT I'M NOT A NORMAL PERSON EITHER??

      about 1 year ago
  • ready4nascar's Avatar

    ready4nascar wrote on rlniece's wall

    have they told you ur options as far as surgery and have you decided on what ur going to have.Bag on the outside,the Indiana pouch or reconstruction surgery. I have had 2 chemo treatments and will have 4-6 more before my surgery. I am not having dariation,Dr's choice, just chemo and then surgery I am 72

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    • rlniece's Avatar
      rlniece

      I have appointments with oncologist and urologist (at a major cancer center) for second opinion. I have been reading about options and preparing questoins. Initial TUR did not remove all of the tumor. Pathology staging is incomplete, setting only a lower bound.

      over 2 years ago