• Readyfreddy's Avatar

    Readyfreddy shared an experience

    Radiation (External radiation ): Had radiation for six weeks and had sore throat, hoarse voice, Thrush - ugh, and chest rashes. Since completing it four weeks ago, I have developed loss of hearing. This coupled with my blurry vision (which instigated my finding out about my cancer) makes it difficult to do much with friends outside the home. Am hoping my hearing improves.

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    Readyfreddy shared an experience

    Oh No (Diagnosed): Freaked out like anybody else would in finding out I had cancer. I considered myself fairly healthy and worked out almost daily.

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    Readyfreddy posted an update

    Discovered I had Medullablastoma. Had radiation for six weeks on brain and spinal cord. I have been finished for four weeks and have loss of hearing as a current side effect. Had my ear wax removed, but still can't hear very well. Apparently may take 3 months to improve. Due for an MRI next week to see what the tumor looks like and then on to chemo. Am hoping the chemo can wait until after holidays but ready and willing to do what whatever it takes. Sometimes feels like I'm the only one I know with brain cancer. The ones I do know have/had breast cancer.

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    Readyfreddy posted an update

    Thank you KarenG. I've been hoping someone would respond and I could talk to people in my situation and learn more about what to expect and whatever else they have to share. Boy, I never knew how many different cancers were out there. I always thought they were like breast cancer that seemingly had endless support and information. Thanks again for letting me know I'm not here by myself.

    1 Comment
    • KarenG_WN's Avatar
      KarenG_WN

      You are not alone. A great place to connect with others here is on our Questions section. Just click on Questions in the purple bar above and that will get you started =)

      about 4 years ago
  • Readyfreddy's Avatar

    Readyfreddy wrote on MaryofBend's wall

    I was recently diagnosed with medulloblastoma and am wanting to connect with someone who is experiencing treatment or has experienced treatment, what kind of treatment, anything you could share.

    1 Comment
    • KarenG_WN's Avatar
      KarenG_WN

      Hi Readyfreddy, welcome to WhatNext. Following is a link to some of the others on WhatNext who are dealing with medulloblastoma. https://www.whatnext.com/users?utf8=✓&search%5Bquery%5D=Medulloblastoma&commit=Search You can read through their journeys and experiences, and if you'd like, you can read out to them by posting on their wall to ask a question you may have. Please let me know how else we can help.

      about 4 years ago
  • Readyfreddy's Avatar

    Readyfreddy posted an update

    Diagnosed with medulloblastama recently and wanting to connect with others who have experienced this or are experiencing it.