• GregP_WN's Avatar

    GregP_WN wrote on rebeccatf3's wall

    Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.

    If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.

    We may have an opportunity for you to make your voice heard by allowing us to share your information with our partner Rare Patient Voice (www.rarepatientvoice.com) and be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.

    For now, what is the biggest issue that you are facing? Please post what you need to know on the questions page and others will help you.

    Thank you for joining us, if you have questions please contact us.
    Greg_P
    4X Survivor
    ACS Voice of Hope

  • Homans' Avatar

    Homans wrote on rebeccatf3's wall

    Hello, Rebeccatf3,
    I was diagnosed with large B cell, NHL double hit, stage 4, back in Feb. 2019, so I expected to fail chemo, and I failed two different standard chemos after a total of three twenty one day cycles, my cancer was so aggressive, it grew back to where it started before my treatment, then I qualified to received CAR-T immune therapy June 2nd, which wiped out all my B cells, along with the cancer, and I have been in remission ever since, so it’s not always bad news, even though you will most likely get pretty down during your treatment. My way of dealing with it was to learn as much as possible about it as I could.
    Cancer sucks, but if eradicating your B cells can solve your cancer issue, you have a good shot at a cure with CAR-T. I was treated at KU. God bless you, and let us know how your doing.

  • rebeccatf3's Avatar

    rebeccatf3 started following

    User: GregP_WN

  • DaveWaz's Avatar

    DaveWaz wrote on rebeccatf3's wall

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter