How are you coming on your progress? Just checking in on you. Stop back in and let everyone know how you are doing.
recon posted an update
Went to Emory hospital today and met New Dr. He suggested another cysto in 1 1/2 weeks for him to see for himself and not totally rely on the referring Dr. He will then make suggestions. He took his time with me and answered my questions. Will let you know
recon started followingabout 4 years ago
I was recently advised that I need to have my bladder removed. I will go to Emory on Tues to see Dr. What do I need to know or ask?
Bring a note book and someone else. There is a lot of information coming at you, so it's good to write down what you hear and another set of ears. Get contact information so you can ask follow up questions or ask for clarification, etc. Questions you might want answered 1)are there alternative treatments 2) is this the best treatment plan for you
If you do have surgery you will want to know what the recovery time is, how this operation will impact your day to day life, what other treatment might you be getting - such as chemo and/or radiation.
You may also want to assess if this a person and team are one you feel that you can have a collaborative long term relationship. If not you may want to find another oncologist/surgeon.
When I saw the surgeon who performed my Nephrectomy in 1995, he had my CT scans hanging and showed me what the issues where, as soon as I saw that my left kidney was 50% larger then my right, I said "this has to come out, right?",
I had my bladder removed two years ago and this past November met with another cancer survivor who had the same thing done. I now utilize an external pouch on my abdomen that gets changed every three to four days and he received an internal one that has to be cathed every two hours or so. I hated my external set-up until I met him and realized that I have some very obvious advantages to my external set-up especially when I use a supplemental leg pouch for additional "storage" during the day and my 2 liter night pouch that gets me through the night. He has to get up every two hours to cath. That's a big difference. So make sure which type you will get and as SueRae suggested, take along someone to take notes...very important.
my doctor at the va hospital. there are two types of blatter cancer .one type eats threw the lining of the blatter.which there are three layers. cancer then spread thru out your system.Before the cancer eat thru the first lining blatter remover is a good option. Second type of cancer does not eat thru the blatter.removeing the tumors and treatment with cemo ect.Will get the cancer under control. Then a check up every three months to see if cancer has returned. This is the cancer i have. I would not have my blatter removed, unless cancer was eating threw my blatter. This would save my life. Good luck and God Bless you.