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    Celebration (Breakthrough): After spending hours & hours over the holidays researching and calling other hospitals & cancer programs, suddenly Beaumont Hospital, only 1 1/2 away, pops up in my Google search. They've done over 500 liver embolizations, & have never had a problem with Medicare! Made appt for consultation on 1/7/12. By the time we left Beaumont, had date of 2/2/12 for radio-ablation instead of the embolization. Dr up there feels it is much more effective, actually heats & kills the tumor. Plans to treat 4 out of the 5 tumors. 5th tumor tentatively planning to embolize a week or 2 after the ablations....it's too close to blood vessels to ablate. Sounds very hopeful; again, not a cure, but they think it can buy maybe even a couple years. And if more tumors appear, they can go back & ablate them also. Hurrah! finally some good news!

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    Celebration (Help from daughter-in-law): One of our daughters-in-law started on-line donation site for us. Just out of the blue! How wonderful of her! It's not a huge amount of $, but it will definitely help.....& is sooooo appreciated!

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    Oh No (Health insurance issue): Ever since liver mets was diagnosed in June 2011, doctors have talked aobut eventually doing radio-embolization of liver tumors. In Deember they said the3 time was right. Spent the next 6 weeks on hold, waiting for the OK from Medicare and secondary insurance. It never came. Someone from Interventional Radiology was running all the insuranc stuff, she finally called & said insurance wouldn't commit to covering it, the hospital refused to do the procedure without a hefty up-front out-of-pocket payment. no way could we afford $25,000 in one lump! Up to me to find a way to get it done!

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    redcct wrote on susie81610's wall

    Hi Susie! Don't get on here very often. Wondering if you are still getting the Herceptin, and how you're responding to it? Hope it's helping. I see that you get your treatments at HVH....not sure where that is. My husband is on adjuvant therapy for life also...hopefully for a long time:) We live just south of Toledo, THE was 3/2011 at U of M (Dr. Orringer), current oncologist in Toledo, also sees Dr. Koffner at Beaumont in Royal Oak. Scheduled 2/2/12 for radio-ablation up there to hopefully wipe out 4 of the 5 metastatic tumors in his liver. 5th one is in a bad position for ablation, so possible embolization in a couple weeks for it. He's been getting 5FU/Herceptin every 2 wks since July, and has the 5FU pack also....but only for 2 days after chemo. Used to get Oxiplatin also, stopped that in November, he just couldn't tolerate it....esp for the winter. He still has some neuropathy from the Oxiplatin, & the cold weather makes it much worse.

    Hope your sister is OK with her heart surgery. Having family issues here too, so I know how stressful it can be! It's harder for Randy, he's home most of the time in the winter (somewhat mobility impaired from a brain aneurysm back in 1997), so he has way too much time to dwell on "stuff". I usually work 3 days/ week, so the family frustrations don't bother me as much. I need to find a hobby for him besides on-line poker!!

    As for having one boob bigger than the other & unable to wear a bra......have you tried a sports bra or a sleep bra? If you really need the support, they aren't great, but some of them are pretty stretchy...might work for you, be more comfortable than nothing at all. Hope the enlarged lymph node isn't too painful; & turns out to be something that just slowly goes away.

    You seem to keep pretty active & upbeat, so hang in there! Let me know how the Herceptin is working for you!

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