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    User: dearestdeb

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    reed4vols wrote on jenpwrs's wall

    Hey there! I am in Oak Ridge battling the same demon as you are. I often go through Kingsport on my way to Wake Forest for treatment. You have had serious complications!!! I am thankful that I recovered well after both of my CRS/HIPEC surgeries but sadly the cancer is still there. I had a complete hysterectomy, lost my gall bladder, spleen and colon, ending up with a permanent ileostomy. I feel pretty good right now but my next move, when symptoms appear, will be systemic chemo. Feel free to email me: [email redacted] if you want to chat. Good luck with your journey.

    Nancy

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    User: jenpwrs

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    reed4vols shared an experience

    Clinical Trial (Phase II random to determine which chemo works best in HIPEC): During my first surgery, I received the experimental chemo (oxaliplatin). Recurrance was visible in 6 months. During my second MOAS, I received the standard mytomycin-C. I assume that I am no longer in the study and that my results were logged as part of the research. This was done at Wake Forest Medical Center.

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    Decision Point (Trying to decide if I should try systemic chemo or not...): During surgery, a heated chemo wash was put directly into my abdominal cavity to try and kill any cancer that was not taken out manually. Another surgery is very dangerous so my decision is to try systemic chemo or not,...it will not cure but can stall tumor growth in some patients. I feel pretty good right now so I am weighing whether to make myself sick with chemo now or to wait. Currently, my mind set is to wait and my surgeon and oncologist agree with this tactic.

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    reed4vols shared an experience

    Procedure or Surgery (Surgery): I had cytoreductive surgery with heated chemo wash, commonly in our circles, called MOAS (mother of all surgeries). I had the first MOAS in December 2010, then after recurrance and 2nd MOAS in Feb 2012. The cancer is still active and a third surgery will be very dangerous so I am currently in a wait and watch mode, considering various chemo regimens that cannot cure but may possibly stall tumor growth.