• reginak's Avatar

    reginak asked a questionSarcoma - Adult Soft Tissue Cancer

    fatigue 2 years after diagnosis?

    • Vettelvr's Avatar
      Vettelvr

      Hi,
      I completed treatment April of 2011 and have been on Anastrozole for the last 2 years. The fatigue is still there, although not as bad as right after the radiation. Several medications can also cause this. I know the Anastrozole does cause fatique. I just try to accept it. It's hard to deal with sometimes, but it sure beats the alternative :) Everyone tells me to just get used to it as this is my new normal. Good luck to you.

      almost 4 years ago
    • Lili24's Avatar
      Lili24

      Try juicing greens and fruit everyday, it helps me a lot to get appetite and right nutrion, also do daily light exercise, stretching, slow walk , or join Wellness program for cancer patient in your area perhaps, because they teach you in a slower pace to get the energy back. More You move, less tired you will become.

      almost 4 years ago
    • GregP_WN's Avatar
      GregP_WN

      During my radiation treatments I had to go home most days and take a nap. I got over that, but still, 4.5 years later, I can tell a difference in needing sleep. I take a nap on the weekends unless I am busy all day doing something. I get tired easier, but I wouldn't call it extreme fatigue now, but it was during treatments. I hope you work out of it.

      almost 4 years ago
  • reginak's Avatar

    reginak shared an experience

    Loss (Relationship ): This month its pretty much final - I've lost my husband and he has given our kids to his parents as a result of my brain cancer. I hate it, but it's a chance for a fresh start.

    3 Comments
    • SueRae1's Avatar
      SueRae1

      sending you lots of virtual hugs. I am so sorry that you need to go through this. I pray that you are still able to see and have a loving relationship with your children.

      almost 4 years ago
    • JeanB's Avatar
      JeanB

      I am praying for you and your family. I hope the best for you and your children.

      almost 4 years ago
    • MarianneT's Avatar
      MarianneT

      I am sorry to hear you are having such a terrible time. Keep that positive attitude of a fresh start. My thoughts and prayers are with you and your kids.

      almost 4 years ago
  • reginak's Avatar

    reginak posted an update

    It has been almost 2 years and many rounds of MRI's since my brain cancer diagnosis. This week I was told that I had a large lump in my breast that may or may not be cancer and has to be removed no matter what.
    I have lost physical custody of my children, and in a way I'm glad because I don't want two young kids going through this with me. There has to be a point where stuff stops happening.

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Sorry for the "surprise". That's how I feel every now and then. Everytime I start feeling all fuzzy about how good things are going, something sneaks up and kicks me in the knees. Take it one step and a time and let us know how you're doing and if you need help.

      almost 4 years ago
  • reginak's Avatar

    reginak started following

  • reginak's Avatar

    reginak asked a questionSarcoma - Adult Soft Tissue Cancer

    recuurance of malignant brain tumor

    5 answers
    • akristine's Avatar
      akristine

      I was told the best revenge is massive success. Outlive your diagnosis and the 50% recurrence rate as optimistically as you can. I'm 16 months out of radiation and alive. I plan to around for quite a while. If the sarcoma returns, I'll fight it again and again and again. If I could send some of my strength to you, I would.

      almost 4 years ago
    • reginak's Avatar
      reginak

      Thanks guys. I try to follow this advice, but sometimes I am too much of a realist to just live life as though I won't have a recurrence, but the possibility is scary.
      My bucket list was almost compete before my diagnosis, so now all I want is to get my kids back.

      almost 4 years ago
    • Joy1976's Avatar
      Joy1976

      I'm sorry too. I was told I have a 86% chance of mine in my spine coming back in 5 to 10. It's like a horrible prison sentence inside your own body! I wish you the best and can only say, live and love for today.

      almost 4 years ago
  • reginak's Avatar

    reginak asked a questionSarcoma - Adult Soft Tissue Cancer

    colon polyps

    • SueRae1's Avatar
      SueRae1

      I have had polyps removed during colonoscopy, they are nothing to worry about, that's why it is so important to have the procedure, the remove the polyps before they can morph into cancer.

      almost 4 years ago
    • GregP_WN's Avatar
      GregP_WN

      Me too...I had a colonoscopy after the PetSCan showed a hot spot there. The polyp was, as the doctor described it, " a big ole honking sucker". but wasn't cancerous, but they need to be taken care of or they have a chance of turning into colon cancer.

      almost 4 years ago
    • IKickedIt's Avatar
      IKickedIt

      First, there is no sense in worrying because there is nothing you can currently do to change the situation. Wait until the pathology comes back. There are some types of polyps that will never develop into cancer. Other types do develop into cancer if not removed. Regardless, they have been removed and because she had them, they will recommend that she have her next colonoscopy sooner than had they not found any. Yes, although it sounds like there's room for improvement in her personal habits, she is having her preventative screenings which is so important. At least she is not avoiding taking care of that aspect of her health.

      almost 4 years ago