• reigelsberger's Avatar

    reigelsberger asked a questionProstate Cancer

    Metastasized Prostate Cancer in my Lymph Nodes &Bones(Stage IV), receiving Chemotherapy for 6 treatments to treat the bone Cancer.

    • carm's Avatar
      carm

      Call the American cancersociety and the patient advocate website. CTCA...that will cost you. They are a for-profit based hospital and are known to be costly... Sometimes unnecessarily. Best of luck to you.

      4 months ago
    • JaneA's Avatar
      JaneA

      Each of the places that you mentioned probably has a social worker, insurance coordination, and a financial aid advisor. Plus the pharmaceutical companies provide low or zero copays for their medicines if you don't have insurance or have become unable to work.

      Just focus on your medical situation and reach out to the staff to help you with the financial part. Best wishes for treatment success.

      4 months ago
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  • reigelsberger's Avatar

    reigelsberger asked a questionProstate Cancer

    What are my very best options, to survive the longest, with Metastasized Prostate Cancer in my Lymph Nodes & Bones?

    5 answers
    • po18guy's Avatar
      po18guy

      I would go immediately to a National Cancer Institute designated comprehensive cancer center. They are state of the art and employ the best and brightest, perform research (clinical trials) and overall, provide you with the best possible outcome. Find the nearest center here: https://www.cancer.gov/research/nci-role/cancer-centers/find

      Eat healthy and exercise as your body allows. Drinks lots of fluids and rest when you need to.

      I survive by prayer. Few seem to believe in that nowadays, but I should have died in 2008, and then in each and every year since then. Apparently, the Lord has other plans for me.

      4 months ago
    • Lynne-I-Am's Avatar
      Lynne-I-Am

      Agree with the others. You will not know what your best options are until you do your homework and research your options and talk to several different specialists. My brother in- law did just that when he was diagnosed with late stage prostate cancer. He chose broad spectrum radiation and celebrated his five year survival several months ago. His choice may not be the best choice for you however. You have several cancer centers in Iowa, one in DeMoines and two in or near Iowa City. Sometimes we need to travel to get the best care available, that may be a few hours by car or even out of state when necessary. Clinical trials are always a possibility .There is no downside to prayer and personally I think a positive determined attitude when battling this disease helps.

      4 months ago
    • carm's Avatar
      carm

      Hello, I'm an oncology nurse. Stay on the TIP (testosterone inactivating pharmaceuticals) therapy. There are other medications like Xtandi or the vaccine Provenge. Best of luck to you.

      4 months ago
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    reigelsberger asked a questionProstate Cancer

    Metastasized Prostate Cancer

    4 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      I have a friend with stage IV lung cancer who is literally a poster girl for the one in Oklahoma. Her doctors prior to going to CTCA had more or less given up on her and that was 5 or 6 years ago.

      I had the same experience, but I went to a NCI-designated cancer center instead of CTCA. Before deciding, you might want to see what research centers are near you ... or, if travel is no option, check out MD Anderson and/or Memorial Sloan Kettering ... among MANY state-of-the-art facilities where you will also receive excellent care.

      I think CTCA is probably a fine place to go. They are expensive and won't take people on Medicare so you need good insurance to qualify to go there.

      4 months ago
    • Scoofer's Avatar
      Scoofer

      CTCA flew me out to their facility near Phoenix Arizona for a second opinion in December of 2015. I had already had my prostate removed in my home state of California and the pathology report from my biopsy confirmed that my cancer was aggressive (Gleason 9). They wanted to give me radiation if possible but MRI’s revealed what they expected was metastatic cancer in my pelvis and spine. To confirm these were Mets from my prostate and not something else they took a biopsy of my bone and grew a culture proving it was, in fact, Mets from my prostate. They informed me radiation was no longer a curative option and I would need systemic treatment. They also informed me they would endeavor to do everything they could to prolong my days and give me the best quality of life possible, but that my cancer was incurable at this stage. This was all done in such a patient-centric way with a lot of care and concern that I chose to have CTCA handle my care from then on. They have been extremely generous to me and my family by accepting my in-network deductible as the cap for payment even though I am out-of-network. They have also made deals with pharmaceutical companies to have them provide expensive drug protocols to me at no expense other than the administration of those medicines. They prescribe to National Comprehensive Cancer Network standards so the services they offer are the same as what you’d get at any of the “name recognized” cancer hospitals. Anecdotes from other patients who’ve earlier sought treatment elsewhere reveal they prefer the way the doctors and nurses interact with them at CTCA. I highly recommend This organization. Call them to see if they can work with your insurance carrier.

      4 months ago
    • eljay's Avatar
      eljay

      I have not had experience with them but read this to hear some experiences.

      4 months ago
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