• BoiseB's Avatar

    BoiseB wrote on Reporter's wall

    Hi
    Sorry I am so late in welcoming you to WhatNext cancer survivors and their loved ones should not have to fight cancer alone we're here to support you. Be sure to check out the PINBOARD You will find lots of inspiration and information there and a few laughs to boot
    I am a nine year survivor of stage IV esophageal cancer. I was one year older than your loved one when I was diagnosed. I was told that I had 4-9 months to live.
    Currently I am dealing with two other cancers.
    I won't say survival is easy but it is doable and worth the effort
    Hold the date April 26 2042 You are invited to my 100th Birthday party

  • GregP_WN's Avatar

    GregP_WN wrote on Reporter's wall

    Hello and welcome, we are sorry for your diagnosis, but we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page, Take a look at it to get you started on some information. You will notice at the left side of that page a listing of most types of cancer. You can scroll down to find your diagnosis. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

    https://www.whatnext.com/conditions/cancer/

    If you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site.

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    GregP 3X Survivor
    WhatNext Community Mgr

  • chiefomni's Avatar

    chiefomni wrote on Reporter's wall

    I am an esophageal cancer stage III survivor of 18 years. We created the Esophageal Cancer Education Foundation www.fightec.org in part to help patients with their journey through this disease.

    We have co-authored a book called 100 Questions and Answers about Esophageal Cancer published by Jones and Bartlett and you can get at any book store.

    We have also published a book called Esophagectomy Post Surgical Guide Questions & Answers published by Authorhouse that you can get at any bookstore or on our web site www.fightec.org

    We have support groups that meet by conference call on a monthly basis. Patients calling in with quality of life questions and hearing how other patients have handled a specific issue.. Go to www.fightec.org and click on services to get more information.

    We also have a 24 hour hotline to help with quality of life questions as well. We have a You Tube Channel https://www.youtube.com/channel/UCDkh7_H9BOnNASdmG4pdF0g . If you subscribe to this channel, you will receive notice each time we add a video about esophageal cancer to it.

    Good luck
    Bart

  • Reporter's Avatar

    Reporter started following

    Question: Proton Treatment

  • Reporter's Avatar

    Reporter asked a questionEsophagus (Esophageal) Cancer

    Proton Treatment

    • GregP_WN's Avatar
      GregP_WN

      It is a different type of radiation treatment. It is supposed to be way less damaging to surrounding organs and tissue. The equipment is ridiculously expensive and an entire new facility/wing has to be built to house the huge equipment which prevents smaller facilities from having it. It does look promising as for having fewer side effects. If it would have been available to me when I had radiation for my last diagnosis in 2008 I wouldn't have the lingering side effects that I endure on a daily basis now. If you are considering it, I can only offer what I have read about it. But based on that, I would take it with no reservations. We hope you're doing well.

      5 months ago
  • Reporter's Avatar

    Reporter shared an experience

    Procedure or Surgery (Implant chemotherapy port): Waiting about 5-days for our meeting with Oncologist who will give us results of PetScan and chemotherapy treatment plan. We will discuss proton treatment and other non-conventional treatments.