• Ria's Avatar

    Ria started following

    User: lizardlipps

  • Ria's Avatar

    Ria shared an experience

    Procedure or Surgery (Axillary Lymph Node Dissection): In fall of 2007; I started having very severe lower back pain. Never had any injuries, falls, car accidents, etc....just out of nowhere. After xrays and MRI's, came back as degenerative disc disease. But....they did not use contrast with the MRI's at first, rather surprising considering my cancer dx. So...new doctor, who does order another MRI, this time with contrast. And it came back highly suspicious for Blastic Metastasis--told me I was looking at Stage 4. Was absolutely floored. Had a biopsy done with came back negative. MY oncologist even sent a sample down to Fred Hutchinson/University of WA (I live north of Seattle in a very rural, small town area)...again it came back negative. He's reassured me it's NOT cancer/metastasis; but they don't know what it is. So now I live in constant, chronic pain with that. And then another scare--.my breast cancer was in my right breast; they removed 10 lymph nodes which were all clear. But in 2010; I developed 2 enlarged, swollen lymph nodes under my LEFT arm and being a cancer survivor....the decision was made have them removed ASAP and biopsied. Came back negative thank god; But after all these scares and putting my friends and family thru the horrible waiting, etc....I decided NO MORE...no more mammo's, tests, etc. If it comes back or metastasizes; they can't do much anyway, so what's the point? I can't live as fully as I want for whatever time I do have left on this planet cuz I'm always at some doctors...getting poked, smashed, stabbed, etc. I just told my oncologist and primary care to leave me alone.
    Anyone else ever feel like this?

    1 Comment
    • Nonnie917's Avatar
      Nonnie917

      If I were in your shoes I would feel the same way. Sometimes I wonder if these doctors know what they are really doing and the labs too. If you would like to meet and have coffee someday, let me know. I would be glad to share a cup of coffee with you and be a good listener.

      about 4 years ago
  • Ria's Avatar

    Ria shared an experience

    Procedure or Surgery (a peach size necrotic mass that was caused by radiation was removed from the same breast that had the cancer.): At 7 yrs into recovery; discovered a very fast growing necrotic mass (basically dead tissue) in the same breast that had the cancer. Was told it was caused by the radiation treatment; something no one told me could happen. The mass was very, very painful along with the outpatient surgery; it was more painful that the initial surgical biopsies, lumpectomy and lymph node dissection and the surgeon was not at all compassionate, caring, etc. I had no use of my right arm for months and months and then developed a mild case of lymphedema. And it left me a full 2 1/2 inches smaller on that side; with no referrals, consults or conversations at all regarding any kind of reconstruction surgery. I've had so many surgeries over the years, it wasn't the surgery itself; it was the lack of information...that I was never informed that this was a possible side effect of treatment; I think that's the part that gets me the most.
    Has anyone else had this reaction to radiation? I've not heard of one other woman or man having this so just wondering.....????

    1 Comment
    • Nonnie917's Avatar
      Nonnie917

      There is a cancer group that meets once a month here in Mount Vernon and probably someone in that group had the same problem. You can call the cancer center and ask when the group meets again.

      about 4 years ago
  • Ria's Avatar

    Ria shared an experience

    Radiation (External radiation ): Radiation was horrible for me--chemo was a picnic in the park by comparison. After my 3rd radiation treatment; my breast was already bright red and burnt. By the time my 33 rounds were over; my poor breast was one red, raw, open piece of meat....I would cry every morning knowing I had to go in and would beg to do chemo over instead of radiation. Because I'm allergic to so many drugs, couldn't even use neosporin or any kind of antibiotic ointments, etc....it took me 3 yrs after treatment ended to even put on a bra again. At 7 yrs into survivorship; the same breast developed a huge necrotic mass the size of a large peach and had to undergo surgery again. And the necrotic mass (basically dead tissue) is directly caused by radiation and no one told me that could happen. That surgery was more painful than the original lumpectomy too....just wish someone had warned me of the long term affects of treatment.

    1 Comment
    • Nonnie917's Avatar
      Nonnie917

      I am so sorry you had to go through that. The cancer center probably wasn't here then so they could warn you about what you were in for. I hope things are better now.

      about 4 years ago
  • Ria's Avatar

    Ria shared an experience

    Drug or Chemo Therapy (Chemotherapy)

  • Ria's Avatar

    Ria shared an experience

    Oh No (Diagnosed): I had been expecting to be diagnosed for 10 yrs before I actually was.....every single mammogram came back suspicious, then would turn out to be nothing. The year before I was actually diagnosed; had a suspicious spot, went thru a core biopsy and they said it was just a fibroid mass. A year later, the same spot had grown and architecturally changed and showed signs of calcification and it turned out to be cancerous. My doc felt they missed it when I had the core biopsy. So yea, it was a big Oh No, even though I had been expecting it for years.

    1 Comment
    • Nonnie917's Avatar
      Nonnie917

      Did you have the biopsy done at Skagit Radiology where you get the mammograms? If you did that would explain what happened. They are not a very good medical provider because of all the mistakes they make. The radiologist missed a spot on my mammo and it didn't get biopsied. If it hadn't been for my surgeon Morrie Johnson it would have gone unnoticed and who knows what would have happened. He ordered a biliteral MRI and found cancer in the left breast that the mammo didn't pick up. I chose to have a double mastectomy. I wasn't going to fool around with my future.

      about 4 years ago