• riccidj's Avatar

    riccidj wrote on jeffbrook999's wall

    Did yo get a bmt?

  • riccidj's Avatar

    riccidj shared an experience

    Milestones: Discharged home day 30 starting to walk for exercise

  • riccidj's Avatar

    riccidj posted an update

    Sorry there was so much time since my last upset. The first few days during engraftment are easy. But the next seven to 10 days were pretty rough. Bad mucositis pain sometimes at 9 out of 10
    its date 11 and my fever has finally gone

  • riccidj's Avatar

    riccidj posted an update

    Day plus four for BMT yesterday was tough. Still afebrile. Getting pain under control. Working each day to take care of myself, whether it's oral care, or exercise. Today looks like it's going to be a better day

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Everyday that comes is a new and better day! Stay moving ahead.

      about 4 years ago
  • riccidj's Avatar

    riccidj posted an update

    Bone marrow transplant 2 days ago. So Feb 21 is my new birthday!

    1 Comment
    • GregP_WN's Avatar
      GregP_WN

      Congrats! That means more birthday cake! You will find you get to celebrate a few anniversaries and milestones, each important in it's own way.

      over 4 years ago
  • riccidj's Avatar

    riccidj asked a questionNon-Hodgkin Lymphoma (NHL)

    any ideas on treating painful mucositis

    • nancyjac's Avatar
      nancyjac

      I took omeprazole (the presciption version of prilosec and immodium for the accompanying diarrhea.

      over 4 years ago
    • po18guy's Avatar
      po18guy

      I was prescribed Nystatin, which is a swish-n-swallow anti-fungal. For some reason, it helped. I also had some of the generic "magic mouthwash", but never used it. It completely numbs your oral cavity and there is danger that you could injure your cheek or tongue due to a total lack of feeling. If you use the magic mouthwash with liquid or blended foods, that would be fine.

      over 4 years ago
    • carm's Avatar
      carm

      Ask your doctor for a prescription of Miles Solution and use some popsicles to keep your mouth numb to help with the pain. Best of luck to you, Carm RN.

      over 4 years ago