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    Rita shared an experience

    Procedure or Surgery (Surgery): It's 2012 and I made it! Expanders gone and implants in! Everything felt better from the moment I woke up in the recovery room. So much pressure was gone and my breasts didn't feel like boulders anymore! Recovery took several days and it was about 2 weeks before I could go back to work, but I think part of recovery was the release of months of exhaustion from fighting for so many months. Still healing and unable to sleep except on my back, but progress is being made every day and I finally feel like I'm getting my groove back.

    2 Comments
    • digger6218's Avatar
      digger6218

      This is encouraging to me as I am still getting the expanders filled. I can relate. The fact that you said right after the implants the pressure was off. I should be late May for my implants. After each fill ,I feel exhausted...Not sure why. But I will make it too. Thanks

      almost 5 years ago
    • Momofivedcisbc's Avatar
      Momofivedcisbc

      Rita, Are you still on the website? I am sorry for your extended experience and things being more difficult than you expected. Two months ago I had a double mastectomy and diep flap reconstruction. Physical recovery is going well. I am optimistic. The emotional and psychological impact of what we went through is just as important. DCIS is definitely an intense diagnosis, especially when it is as extensive as ours. I expect to be living with adjustments to my body emotionally for a few years. If you would like to communicate about your progress, struggles and successes, I would love to continue to hear about your experiences. I would love to be here for you and be a part of your suppport team.

      about 4 years ago
  • Rita's Avatar

    Rita shared an experience

    Side Effects (Pain): Tissue expanders were awful. Pain in the breasts, pinched nerves, numbness, swelling, tingling, tendonitis, bursitis. I chose to deal with it by pushing through it all and staying focused on my goal of being done with it by end of 2011. Eternally thankful to my wonderful physical therapist for helping me manage it all and keeping the end in sight.

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    Rita wrote on Patty's wall

    Hi Patty! I was diagnosed with DCIS Stage 0 in April 2011. 2 lumpectomies, 1 sentinel node biopsy and 1 bilateral mastectomy later..... every day is still a challenge and I'm gradually learning how to deal with them as they come. There are a few things that offered great comfort as I was heading into the mastectomy that I would highly recommend for you. 1 - Dr. Susan Love's book. It helped explain so many things in terms I could understand and helped begin my education process. 2 - Once we made the decision to have the bi-lat, we never doubted that it was the right thing. 3 - Start looking for a good physical therapist who specializes in breast cancer treatment recovery. I look forward to every minute spent with mine and simply cannot imagine where I'd be without her! A good one will help physically with strength and flexibility as well as providing special emotional support and comfort.

    There are many other little things, just make sure that you're making the best possible decision for you! For me, it was simple. I just didn't think I had the strength to go through the regular waiting and worrying in hopes that it didn't return (in my case the odds were very high since a very small portion showed on the original mammo and none on the mri). I like to say that we chose a treatment plan that was far worse in the short term than the diagnosis, but far better than the long term potential (both physically and emotionally).

    You're doing the right things in reaching out for help and talking to a plastic surgeon for advice on the best plan. If he/she is a good one, they'll do a great job of explaining what those options are and what the best is for you. Mine even drew pictures to help us understand.

    One thing that has also helped immensely is understanding that you're NOT alone. It may seem like it sometimes, but there's a vast network out there of women who are kind, generous and willing to listen and help. I really had no concept of that before and still am amazed at how people just come out of the woodwork when you had no idea they were there.

    Good luck - I'm sending a gentle hug your way.

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