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    robsterstu wrote on padua101's wall

    Hi Padua101, Welcome! I had and uncle and cousins who lived in Oxnard. Noticed you were EGFR positive. Are you on a targeted therapy? Where do you receive treatment? Again, welcome and I think you'll find this a pretty friendly and helpful site!

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    robsterstu wrote on Fudgie's wall

    Hi Fudgie, I am also a Michigander. I started with the EGFR mutation. I am being treated at Karmanos. Just curious as to where you are being treated and what particular treatment you are on. Again, welcome!

    • Fudgie's Avatar

      I was dx last December with stage 4 adenocarcinoma, EGFR+ And am being treated with Afatinib. I am being treated up north in Charlevoix. My onc is affiliated with Munson in Traverse City. Unfortunately, I'm not near a major cancer center so I don't have the medical support that's available in larger cities. My onc is in town just once a week, the rest of the time I have to rely on the nurse practitioner at the infusion center. I'm actually the first Charlevoix hospital patient being treated with Afatinib. If the time comes for a second opinion I'll probably go to U of M. Thanks for the welcome.

      over 4 years ago
    • robsterstu's Avatar

      I was on afatinib for 11 months before it stopped being effective. I'm currently taking Tagrisso because they found a T790M mutation. It will be two years past diagnosis at the end of the month. I've also been on chemo (absolutely hated it) and a trial drug which proved ineffective. I hope aftatinb works as well it did for me. If you ever have any questions don't hesitate to ask!

      over 4 years ago
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    robsterstu wrote on BoiseB's wall

    Saw the thread concerning a charity, but no link or information. Has the information changed or been removed?

    1 Comment
    • BoiseB's Avatar

      Thanks for the info It was working when I posted I will check it out

      over 5 years ago
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    robsterstu started following

    Question: Struggling

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    robsterstu wrote on vickyg's wall