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    RockTom asked a questionHodgkin Disease

    How many have been cured of Hodgkins Disease but then had it return later?

    5 answers
    • Erik1059's Avatar
      Erik1059

      I had hodgkins that had returned multiple times, Once you get out of the five year mark, there is a lot less worry. I have now been disease free for 23 years. I am definitely not typical. Please read my story below.

      https://www.whatnext.com/blog/posts/from-a-devastating-diagnosis-in-his-20s-to-23-years-of-surviving-and-thriving

      almost 2 years ago
    • berly462005's Avatar
      berly462005

      I have been cancer free for 5 years now but its always not far from my mind that it could come back or as another type. I try not to dwell on it like I used to but everytime something different is going on with your body-that's the first thing that comes to mind. My doctor told me I was cured but I never say that, I just tell people I am in remission.

      almost 2 years ago
    • Kathy1's Avatar
      Kathy1

      I'm two years out and still cancer free and I am really hoping to keep it that way.

      almost 2 years ago
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  • RockTom's Avatar

    RockTom posted an update

    Learn more about tips to manage side effects, standard of care, clinical trials and much more during CancerCare’s Emerging Therapies in Hodgkin and T-Cell ‪#‎Lymphomas‬ workshop on April 15, 1:30 p.m. EST. http://ow.ly/Krum1

    http://www.cancercare.org/connect_workshops/454-emerging_therapies_hodgkin_and_tcell_lymphoma_2015-04-15

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    RockTom shared a photo

    Wall_give_your_smile__word__heart

    I like this, since cancer I try to do all of these, I look at life a whole lot differently now, don't you?

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    RockTom asked a questionHodgkin Disease

    Sores in my mouth again. Does anyone use anything different than "magic mouthwash"?

    9 answers
    • lilymadeline's Avatar
      lilymadeline

      I did try the L-lycine myself but it was a complete waste of money but I tried it when I got the sores from my autoimmune disease, but I did try it more than a few different times with different brands and and for long periods of time too. But I have talked to other Lupus patients and it didn’t work for them either. Maybe it depends on what is causing them? Everybody said that they should work so I was very disappointed. Who knows!

      over 2 years ago
    • vacgirl's Avatar
      vacgirl

      For the last two cycles as soon as I started feeling some tenderness or sores, I start rinsing my mouth morning and night with hydrogen peroxide. I do not swallow it, I just swish it around for a minute or so and spit. I have not had sores to where I couldn't eat, slight tenderness only. I have the magic mouthwash but have not had to use it since I started this. Maybe it would work for you too. Can't hurt to try right? It doesn't really have a taste, and I rinse with water after anyway.

      over 2 years ago
    • lilcat's Avatar
      lilcat

      Hello, Yes, I asked my oncology team if I could use a topical ointment that my dentist prescribed in the past (I occasionally got sores inside my mouth, on lips, tongue and gums before cancer too) and she said it was ok. It requires a prescription, called 'Triamcinolone'. It seemed to speed up the healing of the sores, although it does not give you immediate relief. I put it on the affected area at bedtime for 2-3 nights and the sores healed quickly. Check with your oncologist. I hope this helps. All the best to you.

      over 2 years ago
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