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    GregP_WN wrote on Rodge's wall

    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/multiple-myeloma

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

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    WhatNext Community Mgr.

  • Rodge's Avatar

    Rodge asked a questionMultiple Myeloma

    Treatment for Peripheral Neuropathy

    14 answers
    • papabill's Avatar
      papabill

      I have been dealing --- living - mostly unsuccessfully with CIPN for several years now. For almost two years took the alpha lopoic acid along with several of the B vitamins and folic acid and found for me they provided no relief. I also tried several months of acupuncture -- again for me nothing. All the while I am on Gabapentin at night (now taking 900mg) when going prone in bed it seems to become most acute and most often need to get up and go downstairs and watch TV for about 30 minutes before it settles back down enough for me to go back to sleep. Even take .5mg of Ambien. I met with my medical oncology nurse this week and she suggested I try wearing compression stockings when I go to sleep. I have tried it now for two nights and it "may" be showing some benefit. We'll see. Anyone else with any ideas please share. Keep the faith

      6 months ago
    • Anniekell's Avatar
      Anniekell

      I find a heating pad brings instant relief. I also take gabapentin and find it controls nerve pain.

      6 months ago
    • geekling's Avatar
      geekling

      Rodge, why dont they simply let people use marijuana??

      It helps many people.

      6 months ago
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    DaveWaz wrote on Rodge's wall

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter