- rokjhn
- Katy, TX
- Member Since Apr 2013
Their Diagnoses (1)
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- Patient: Malignant Fibrous Histiocytoma (MFH)
- Patient Info: Finished active treatment less than 5 years ago, Diagnosed: over 8 years ago, Male, Age: 56, Stage III
- View this journey (7 Experiences)
Their Links
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rokjhn started following
about 7 years ago -
rokjhn shared an experience
Radiation (External radiation ): Had 25 doses to my calf with no real side effects until the week after finishing. It was at that point that the radiated area started to blister and look like a horrible sun burn, lasted about a week and then all appeared to be well.
about 8 years ago -
rokjhn shared an experience
Clinical Trial (Anti nausea medication protocol): Fosaprepitant is drug commonly given before and after chemo to help prevent nausea and vomiting. The Clinical trial involved getting an extra dose on day one and then day four of chemotherapy. I had the protocol on my first round and did not on round two. What a big difference it made to have the protocol and I was fortunate to have it for my final four rounds.
about 8 years ago -
rokjhn shared an experience
Side Effects (Constipation): Constipation that led to major hemorrhoid issues and pain like I've never experienced. In hindsight I should have been taking stool softeners from the very beginning and the problems probably wouldn't have been as bad.
about 8 years ago -
rokjhn shared an experience
Side Effects (Chemo brain): Chemo brain is the real deal and I can describe it as being in a fog. I couldn't concentrate on anything for very long, which made reading a book, writing, or even watching TV an exercise in futility. Confusion was almost a constant state of mind and it was a very frustrating experience.
about 8 years ago -
rokjhn shared an experience
Drug or Chemo Therapy (Chemotherapy): Chemotherapy was the hardest thing I've ever had to experience, that being said, doctors indicated that I handled it remarkably well. Had six rounds in total, each round consisted of 5 days of 24 hour infusion of Adrimiacyn, Ifosfamide, and Mesna.
about 8 years ago